I just tuned 58 years old. My first bleed was in 2009, I was 51. It was pretty bad because my cavernoma was in the brain stem, near my pons. But with God's grace I recovered with a year of therapy. During the duration of my therapy, I took an herbal supplement called NeuroAid. You can check their website and read more on it. In 2011, I had an episode that gave me partial blind spot on my right peripheral. But it slowly, to 90%. My most recent mild bleed was a month ago. I have slight double vision, tight jaw, an awful taste on my tongue, nausea, dizziness, a bit of balance issues. Iam optimistic that it will all go away. It is only this last episode that I was diagnosed with cavernomas, 2 of which are within the brain stem area, and 4 more scattered in the other parts of my brain. Surgery is not an option per my neurologist. Iam would like to know what do other neuros say on what can trigger a bleed, what to avoid doing and what preventive measures we can do to avoid another bleed?
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