Great Ormond Street Hospital have produced a new information sheet on BWS. It includes the long awaited information on genetics and screening advice for children with BWS.
The link is:-
Or go to GOSH website and search Beckwith Wiedemann Syndrome.
We hope this information will clarify the guidance about screening for tumours that families have been asking for. It has been produced with the help of the support group and a link will go on our website soon. We hope you find it helpful.