COngratulations on the birth of your daughter. Our son Tom has BWS and is now 33 with three lovely children of his own. If you live in the UK There is a national service for tongue reduction at Great Ormond Street Hospital. WE are also very happy to be contacted. Our phone number is 01258 817573. Best wishes. Bob and Gill Baker BWS Support Group UK
Congratulations: COngratulations on the birth of... - BWS Support
Congratulations

Written by

BobBaker
Administrator
To view profiles and participate in discussions please or .
1 Reply
•
Thank you so much!!!we live her in Canada.I dont know if there is a group of BWS support here. Im still in search..but happy to find this group even its far..i be able to communicate amd learned more with BWS! thanks again!!
Not what you're looking for?
You may also like...
Tongue reduction for adults
Have just had an enquiry from someone who has suffered from macroglossia for around 50 years. Is...
Can anyone recommend a good geneticist? Who did u go to?
Our son might have BWS. Will testing give us a definite answer or is there a chance we still dont...
Worried about scans and blood tests
Hi. Any mums or dads with older children with BWS, does the anxiety of going for scans and blood...
Will tongues of babies with BWS get bigger as they grow?
Hi I'm Josh, my daughter has BWS. She was born with omphalocele, has large tongue, ear crease, and...
Blood tests and ultrasounds
Our daughter was diagnosed with BWS when she was 8 weeks old. We were told at our initial...