Our daughter was diagnosed with BWS when she was 8 weeks old. We were told at our initial consultant appointment that she would have blood tests every 6 weeks and ultrasounds every 3 months which we were happy with. The hospital has now changed their mind without explanation, and are now only going to do bloods every 3 months. We are obviously really concerned about the situation. Can anybody tell me what the guidelines are in this country?
Blood tests and ultrasounds: Our daughter was... - BWS Support
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