New here: Hi, We're new here. Our 19 month old... - BWS Support

BWS Support

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Hi new here from England!

Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood tests back to see...
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Sharron16•
23 Replies

Will tongues of babies with BWS get bigger as they grow?

Hi I'm Josh, my daughter has BWS. She was born with omphalocele, has large tongue, ear crease, and...
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mayoljosh•
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How reassured are you by UK doctors that frequent scans/bloods is not necessary for the 'low risk' hypomethylation at KvDMR genetic cause?

I ask this in light of different policies around the world where for example,in the States all BWS...
familyfour profile image
familyfour•
14 Replies

Blood tests and ultrasounds

Our daughter was diagnosed with BWS when she was 8 weeks old. We were told at our initial...
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Anna-Lisa•
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Is it BWS?

Hi, I've just joined the group looking for answers as my son doesn't have a diagnosis but he has...
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Jofus•
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