My daughter was born on 35th week with large omphalocele. Her weight was 2kg 645grams (5.83 pounds). Blood test was taken and after 2 months she diagnosed with BWS. She have most the symptoms of BWS (macroglossia; umbilica;l hernia, unexplained hypoglycemia, jaundice; ear creases). For the first 6 months she did not put too much on weight because had some difficulties with sucking (was getting tired very quickly while was eating). From 6 months she started to put on weight very quickly. Now she is 10 months old and her weight is 12.5kg (27.5 pounds). Her appetite is very good, even more than that, she will cry when food has finished. I have to control the amount of food I have to give for her so she will not put on weight so quickly. In regards of development she is doing most of the thing babies have to do at this age. the only thing is that she is not yet crawling. she is trying, however could not lay on her tummy for very long time, because of hernia. During this year is planned tongue reduction surgery and very possible hernia repair too.
I have a few questions:
1. Do I have to expect that my baby will always want to eat so much?
2. From 6 months old my daughter start teething and from that time have really bad night colic (will wake up almost every 1-2 hrs crying). Is it common for babies with BWS?
3. What are the chances that in the far future my daughter's children will have BWS too?