Hello All,
I have just listened to the below webinar relating to CBT for tinnitus. I found it really interesting and encouraging that it may work for us (hopefully all of us). I personally am very effected by the "distress" associated with tinnitus and it focuses alot on that. It was recorded 4 years ago but still had lots of helpful information. youtu.be/fVaac8TNoAs
Hi Hop38 Thank you for sharing 🙂 I did a short course of CBT in the spring and found it very helpful even though I was rather sceptical at first. I believe it reduces the distress which helps you not to focus so much on the T - however loud it is . It's nice to talk to a CBT counsellor who knows about T because they understand .
Thanks for your reply doglover1973. I'm glad you found it beneficial. I did start a CBT course myself in May but stopped in August as life was getting too much and just couldn't concentrate on anything. I have restarted it last week, praying I can stick with it this time🙏
Take it steady Hop. I know from other posts you're suffering at the moment. Don't put yourself under any pressure to do CBT . Hopefully this is the right time but - if it's not - you can always try again later. Is your course online, over the phone or in person?
It's online with some 1-1 consultations. Would prefer to do it in person (like everything I do) but bloody Covid has gotten in the way) plus there doesn't seem to be many ppl where I live that do CBT for tinnitus🙄
I know . It's a tricky time to have troublesome T - in terms of accessing help . I did mine over the phone but would've preferred face to face too . There's something very reassuring about talking to someone in person. Anyway hope all goes well for you this time . I think it will help you 🙂
Thank you
Hi Hop - other people may vary in their opinions on this, but I don't think that it's crucial that a counsellor is directly focused on tinnitus to be able to help.
If my understanding is correct, even tinnitus retraining therapy uses core CBT ideas to help patients, rather than a bespoke approach solely for people with tinnitus.
I agree TinnitusUKPat I asked for someone who knew about T but the counsellor helped me with everything - which was a nice surprise .
To doglover1973It’s me Penny again.
I listened to Hops
video about CBT .
quite a good webinar .
What I wanted to ask
you was when he played
all the tinnitus different
sounds mine wasn’t in his
sound list at all !!! So I’m
thinking. “ Oh”. Why I am
different . Mine is like
some electrical fan oven
running all the time and with
a lot of pressure . I feel scared.
now . Any ideas ? How are you today too ?
Hi Penny. Try not to worry . There were only 5 or 6 sounds so I don't expect they covered even half the sounds that people with T experience . There must be so many variations. Have you thought about a second opinion? I know the ENT doctor you saw wasn't very helpful. Perhaps another one might be . All OK here. Wrapping up warm for the short stroll to the park . How are the poodles?
Thanks for replying so quickly so kind of you. I am sure you are right about there must be more sounds . Perhaps I could go to Ent again. Tinnitus is just like three steps forward then 4 steps back , knowing I’m not alone helps . I find this time of the evening more stressful too . Living alone doesn’t always help my poodles are really wonderful . They’ve had a good run in the woods but today it’s got colder again. Last week my clutch in my car packed up and it cost almost 400 pounds for a new clutch . Any stressful situation seems to add toEverything . Hope your walk went well , we have to go earlier now with these cold dark nights please take care. 🐩 🐩 xxx
Rabbit65 if it's any consolation i didn't really hear my tones in the video either. I have so many that it's really hard to figure out what exactly they are!!
Agh Hello !!!! Thanks for writing to me , isn’t it so very odd all these different tones. Do you feel any pressure as well as your tones . I thought the video was very good . He sounded a nice “ calm “ man who knew his stuff . Tinnitus is such a complicated condition and he says it takes about 16 months to reach habituation . Well I’ve had my tinnitus about that length of time. Mine started after the death of my mother and then my sisters husband dropped dead 6 weeks after my mum. My mum did have dementia and was 95 , but Tony was only 75 . I can only assume it was because of that shock . I also know I damaged one ear with the use of an ear bud going in too far. Silly me. When I told Ent about the earbud issue they didn’t even answer me. Anyway I don’t think I’ve habituated yet , some days are better than others . Hope your feeling alright this evening . Goodnight to you . 🤔
So sorry to hear about your mother and your brother in law - that must have been so traumatic for you and probably is why your tinnitus started. I don't feel any pressure but if I get too stressed I get weird feelings like a hollow/echo sound in the ear and sounds are very distorted. Usually clears up in 3/4 days ( thank god). I've had tinnitus for about 15 years....Still don't know 100% what caused it. I do have low frequency Hearing Loss which ENT are confused about as its not a very common type if Hearing Loss and even more rare fir someone my age (39). Tbh I don't think ENT know much about what causes it if your case isn't typical....like a head injury, exposure to loud noise. My guy basically sent me on my way after doing bloods and an MRI which were all clear so I'm still trying to figure out what's going on. I do suffer from dizziness quite often...I've had about 2/3 episodes of vertigo which started in 2019 but lately I just get the feeling of unsteadiness and a fuzzy head....its really strange. I thought I could have Meniers disease but they didn't think do as the vertigo, ear fullness and rise in tinnitus volume don't come all at once🤔! So I'm even more confused as ever. I might see a different ENT but the waiting lists are crazy! Hope your feeling ok this morning
Good morning . I’m like you I try to figure out what’s going on in my head/ears . Maybe we should just try and not work it out anymore , Yes I too have unsteadiness with my balance . I have no hearing loss. Gosh if you’ve had yours 15 years you must be an expert in this weird tinnitus world !!!! All I can say is thank goodness for my bouncy cheerful poodles, who get me out for some walks. I do have arthritis in my feet badly and I try hard to overcome this too. So are you working ? Do you have family living at home 🏡 😃
Good morning! I did habituate to it (as it was very mild), went travelling in 2009 so it clearly didn't bother me. But it started to rear its ugly head around 2018 but this year to date is the worst it has ever been😮💨! I'd love to not try and work out whats wrong with me but at the back of my mind I'm like what if your doing something wrong, eating the wrong foods that are contributing to it and by not looking into it I'm never going to figure out what's going on. I don't think I help myself as I'm currently reading 2 different self help books on tinnitus (both not finished) 1 breathing book and trying to do a CBT course. I feel.overwhemed as there's alot of information for my brain to absorbe and I get to the stage of.not completing any.of them. I know that I have to take a step.back and do 1 thing at a time but I feel.like I'm stuck. Is there anything you can do with your arthritis? Just another thing to struggle with🙄! Yes I'm working (part time) but from home which suits me better with having 2 small kids. Molly is 7 and Orlaith is 3. To be honest they are the only reason I keep going....they need me! My partner works away alot so.its just me and the girls. With working, taking care of 2 kids and a house it does get difficult sometimes. My family live in Ireland so I don't have much help around me....I just keep going!! Do you have any family nearby? Your poodles 🐩 are a blessing to you.
Hi again , yes I do have my sister who lives down the road , this helps me to know she’s there. How lovely for you having children of those ages . I remember so well when my children were that young. I had a bit and a girl , Paul and Natalie. They now have their children. I wish I lived nearer to them . I came down to Bexhill on sea to help my sister with our mother , who as I said sadly passed away, she was my best friend. I am like you I rarely finish a book !!!! My concentration wavers . It can be difficult concentrating on anything with this T . Do you think you might get over to Ireland to visit your family . This Covid situation has made things very difficult indeed. Sometimes my balance is greatly affected with this T. . I love cuddling my poodles and taking them for walks. Oh yes you asked about the arthritis , it really is the most awful complaint. I just keep going that’s all I can say about it. Very painful. Wish you lived near me so we could be friends !!!!
Hi rabbits65 yes we hope to get over for Christmas! All of my nieces and nephews are closely aged with Molly so they have a wale of a time together. Will be great seeing everyone especially recently with my dad having a heart attack. He's recovering well thank god. It's great that you have your sister so near by, I'd love to have mine down the road from me. Would be great to live nearby you also...actually it would be great if everyone on this forum lived near each other😊! To be able to have a cuppa....we don't need to be living near to each other to be friends, I feel like we all ready are☺️
How lovely of you to say that 😃 🐩 yes this is a very friendly community . A meeting with everyone on here occasionally would also be great . 👍 You really have a Christmas to be looking forward to with all your family . I’m hoping to get to see mine too. I’m sure you feel the same as me, to have extra love and comfort after a year of tinnitus we need to have a good time . 🎄 🎅 xxx
Love Penny
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