I'm new here . I have secondary breast cancer and ME I've suffered from tinnitus for over 20 years but it went unbearable mid nov 2019 I was put on a new treatment in Aug one that lowered my oestrogen. The thing is I've been reading that liw oestrogen can cause tinnitus or worsen it . Mines so bad that I'm house bound most of the time . I struggle with sounds as they hurt my ears so having a shower is so difficult , watching TV , listening to people talk the list us endless. My life is hellish at the moment can anyone help please
Regards
Jen x
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JenMeerkat
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Oh Jen, Life must be very miserable for you right now. Do you live alone? Or do you have a husband, partner or friend you can talk to? I always feel a problem shared is a problem halved and you've taken the first step by getting in touch here on the forum.
I can't help with your question but while researching my numerous medical problems I have found that medication helps us in one way but often causes other problems like side effects. I have found the more information you can gather the more knowledgeable you become. This leads to being more confident when speaking to doctors, nurses and consultants.
I really feel you have no option but to make an appointment with your doctor to discuss the whole of your health problems. The more you think about things the worse you will be. and the more depressed you will become. You need answers to put your mind at rest, now! Make that phone call.
Best wishes, and please keep in touch. We will be anxious to know how you are and how you get on. Chrys
I was diagnosed with breast cancer in 2016. At that time I had t and I was ok with it. Mine seems to spike for a few months and then I'm ok with it again. Saying that I would rather I didn't have it. Mine is all consuming at the moment, but I refuse to give in. Hard as it is I get up, go to work and try and do everything I would normally do. It's so hard tho, day in, day out, without a break. I'm lucky as I sleep ok. I take 10mg of amitriptyline every night which helps. On a really bad day I take 20mg.
Message me privately if you want. You'll get through this bad patch, just need to keep busy and do things you like doing. In time the brain refocuses and learns to ignore the t noise. You'll get setbacks, but it does get easier.
The thing is most days it's so bad I struggle to function I cant cope with the level of noise in my ears I cant shower , watch TV talk to people especially on the phone which I put on speaker and turn the volume down even with that it hurts my ears . I cant go out , I have tried, as it just goes worse. I cant sleep most night just about 3/4 broken hours and I take all sorts including sleeping tablets. It's so bad I have considered taking my life . Which I dont want to do but it's so so loud and its almost 3 months since it started . I'm at my wits end I really am .
I stopped my cancer treatment even though I'm terminal . I dont know what to do . My GP says there's nothing he can give me
Hello Jen , words cannot express how sorry I am you for what are you going thru , I'm praying for you every day from now on, and I ask God to give you a miraculous healing as I ask any member that reads your post to please pray for Jen! God bless you and i'm sending you a big hug and lots of love dear!
Bless you, I really feel your pain. I can only say that in my 38 yers with it, it hasn’t all been bad. Mine seems to flare up for a few months and then settle down again. It’s awful at the moment, but I’m lucky as it doesn’t stop me sleeping. I take amitriptyline 10mg 2 hours before bed, but if I’m having a bad day I can take up ton30mg. I also take homeopathic remedies every time mine is bad. Seems to help, but it can’t be proved by science. Even if it’s the placebo effect I’ll take that if it helps me.
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