Hi,
My 29 year old daughter has cirrhosis. I don’t know if I’m in the right place to talk about this? I’ve become her carer and it’s all over whelming. If I’m not in the right place to talk about this can you recommend a chat forum pls. Thankyou kindly x
Hi, you are definitely in the right place. I have only just joined but there are loads of fab people on here that will definitely be able to answer any questions you have. X
Thanks Sassy. I thought I was managing until recently. X
What is your daughter’s history? I also have cirrhosis and I was diagnosed 2 years ago but I am currently healthy and living a normal life with no meds or symptoms at the moment. The lovely people on here are all at different stages so I’m sure you will get great support and advice x
In October 23 I took her to the Drs. She had really bad anemia and she’s lucky to be here. We went Straight to hospital to have tests done and that was when she was diagnosed with cirrhosis. Up until just before Xmas she was managing with medication for the asitices, but since Xmas the medication has stopped working. We’ve been in and out of hospital ever since. X
Sorry to hear this have you been told why she has this?Carole
Hi Carole, They think it’s alcohol related but they’re surprised because she’s so young. Since Xmas she’s been poorly with ascites, her kidneys and sodium levels not good. She’s currently in Derriford being well looked after. It’s been a rollercoaster since Xmas. As I said to Sassy I was managing but now I’m struggling with it. I’m being strong for my daughter but juggling about 10 different balls. Her emotions, my work( self employed hairdresser) and her beautiful dog. Arghh….
Welcome, you are definitely in the right place. There are no strange questions here - ask away. (We don't get into diagnosing people or giving medical advice - but we certainly share lived experience which helps each other better know what conversations to have with our own healthcare professionals - or those of the people for whom you are a carer).
If you are in the UK; you can also have a chat with the great Nurse-led Helpline Team of the British Liver Trust:
Call 0800 652 7330 between 9am and 3pm Monday, and 9am and 4pm Tuesday to Friday (excluding bank holidays) or email helpline@britishlivertrust.org.uk.
britishlivertrust.org.uk/in....
Thankyou. I’ll jot the number down. X
You are in a great place for support - I became my hubbies carer in 2012 when he was diagnosed with cirrhosis completely out of the blue. We've had some journey but he is now 7 months post transplant and doing superb.
No question is a silly one so fire away when you need to - always someone here to offer support.
Katie
I’m knew here too, diagnosed June 2024. This forum is really great and hopefully helps to reassure you that you and your daughter are not alone with what you are going through. The British Liver trust mentioned are a valuable resource too x
Dear Cornishbird29,
If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday 9am to 3pm and Tuesday to Friday 9am to 4pm on 0800 652 7330 excluding bank holidays.
We also facilitate a range of virtual support groups for people in the UK living with a liver condition (and their families and carers). If you would find it helpful to speak to others with shared experience, you can register to join a group here:
britishlivertrust.org.uk/vi...
Best wishes,
British Liver Trust
AIH and Cirrhosis 
Cirrhosis / not cirrhosis
Cirrhosis update 
Cirrhosis 
Cirrhosis?
