Nutrition

[Jasper05]

Hi I'm new to the site but not new to pbc diagnosed in 2018.Think I've been neglected over the years by my consultant as I've only just in the last 7 months seen a liver specialist and even that didn't go to plan I was with my daughter at my 1st appointment and the consultant assumed it was my daughter who had pbc he talked to her for a good 5 minutes until I introduced myself !! He didn't even apologise.

Anyway I've heard that a different diet is recommended if you have liver disease but I'm naive to this as I've only just heard about it ? I don't smoke or drink never have but I have been overweight in the past currently lost 4 stone as I felt dreadful this last 12 months with the pbc. I'm not on any medication at the moment after not been able to tolerate urso apparently there is a new drug just been listed available in 2025.

Just wondering if anyone has been given a diet sheet or given advice about what is better for your pbc or liver disease I'm at stage 3 at the moment any advice is very much appreciated many thanks x

[JonBechstein]

All I really know is that the cancer has spread to my liver.I believe it is a matter of caution and common sense I think you have that already. You can ask for a diet sheet of your g,p practise. I cannot say much yet, as nothing is growing in me! What I can do is wish you a happy time. You might like to write to your g.p., outlining what you say here and there will be plenty of people to advise you when all Xmas madness is out of the way! I pray you whole again and soon