More post op problems

[X19Dave]

Things just keep getting worse they have now told us she has had a stoke, I really do not know how much more my wife and myself can take

[grace111]

in my thoughts, wishing the best for you all.

[LAJ123]

Oh God, Dave, I don't know what to say. You are (both) having the most horrible time. Just now - and I know it's not easy - you are going to have to try to take care of yourself.

At least make sure that you are eating and taking as much sleep as you can. Do you have other family who can support you through this?

On a more medical note, have they been able to tell you how serious the stroke is? I think at this point, that you might have to be quite blunt and ask them to tell you honestly what the prognosis is. It will be different, but then depending on the answer you might want to do things differently yourself.

Do keep posting here, I - and many others, I'm sure - will give you as much support from afar as we can.

Thinking of you

Lucy

[LAJ123 in reply to LAJ123]

BTW which hospital?

[X19Dave]

Addenbrooks

[susieanna]

Sorry to hear such news; wishing you both well and hope there is something positive on the horizon.

[Jahida]

Ah Dave, so sad to read about this. I hope you find out how bad the stroke is or was and what their next plan is. That is a lot to take in for you all.

Wishing you lots of positivity

[h0b0]

So sorry to hear this. You're in our thoughts.xx

[Catfishjumpin]

That must all be so hard for you. I am very sorry she is suffering so badly. I hope you both get some relief and things can stabalize. For now it does sound too overwhelming but please talk to folks who care about you, you will take that peace with you when you are around your wife. I truly fear HE but I do understand I could suddenly be living thru it. It helps me when folks explain what they are going thru. Everywhere here has helped me a great deal simply by sharing their life living with this disease. Bless you.

[pear-shaped]

Hello,

One becomes quite disorientated and overwhelmed when in this sort of situation... You must get clear answers and clarity of the situation...

Praying for you and your family,

Pear

[dooley1]

Oh I'm so sorry it's not really been the experience you expected has it, so disappointing, I hope all things settle down soon and you can get on with your lives with a healthy new liver. We're all waiting for some good news soon. Take care. X

[X19Dave]

Thanks for all of your reply's it is comforting to know that others are thinking of us.

My big worry is that as it was a stoke the effects might not be revisable and she might have the bad eyesight and hearing for the rest of her life.

Knowing my wife she would probably rather have her eyes than a new liver, please do not think we are unhappy that she has a new liver but if her eyes stay as bad as they are she cannot see a tv that is 3ft away or her IPAD at all she will be very very depressed

[Hidden]

Hi Dave, sorry to hear your news , my husband is recovering from a stroke which affected his eyesight , speech and memory ......it is unlikely he will remain on list for a transplant ....he suffers from HE which is worsening .....but on a positive note he has made a good recovery from the stroke , ....it is early days for your wife and from what I understand stroke recovery happens over a prolonged period. You are in my thoughts x

[X19Dave in reply to Hidden]

Blue bells thanks for your reply it does give me some hope.

sorry to ask but did he get his sight back was it as good as it was before and roughly how long did it take for him to get it back

thanks

[Hidden in reply to X19Dave]

Hi Dave, his sight came back within a few days ...he has spatial neglect and bumps into things but this is also improving ...he can watch TV now...I hope your wife is improving 😊

[PCBnPBC]

I have not been following your posts, but just want to add my support and encouragment, it is a roller coaster journey, and you seem to be having a hard time, may it get better...... stay strong.

[Penguin8]

Sorry to hear this you are in my thoughts xxx

[Wass71]

I know its very hard, but try to stay positive. Its surprising how much recovery people have from strokes now, if they were able to administer clot busting drugs, then she may well get better. I'm thinking of you, and sending positive thoughts. Let's hope you start to get some good luck at last!?

Best wishes

E x

[nickiwj]

We are all here for you Dave to listen and provide support to you, your wife and family. I cannot imagine how you are all feeling, especially your wife. If it's any comfort, at least she is hospital and getting 24hr medical care. I am sure the hospital are doing everything they can to continue to make her better, recover from her transplant and make her comfortable. Stay strong 💞🙏🏻

[tillycat]

Thinking of you and your wife, my friends mum had a stroke and couldnt talk or do anything for herself and was put in a home, a month later she started to be able to talk then she started to be able to do a few things for herself and now she is back home on her own and managing really well so never give up hope she has come through so much already she must be a strong person and im sure she will get better and before long all this will be behind you . Lots of love to you both xx

[X19Dave in reply to tillycat]

Hi thanks for your reply, what sort of time did it take from stoke to being able to manage, I have a feeling that I am looking at about a year

thanks

[X19Dave]

Hi Many thanks to you all, I have no one else to talk too

Her walking has got better her eyesight is a little better I know it will take a long time, she has got fluid in her inner ear which is causing her balance problems so this is not helping with the walking I also think it might be having an effect on her eyesight we all know what it is like if we stand up a bit quick head spins and your eyes go a bit funny so I am trying to hold out hope

Thanks to you all

Dave

[X19Dave]

Hi things are looking up they have let my wife go home her ears and eyes are not fully right but are getting better slowly.

At least they thought she was well enough to go home

I am a happy man

Dave

[Jahida in reply to X19Dave]

Hi Dave

It is lovely news. Are her results really good? Hopefully they will keep a very close eye on her. How is she doing physically?

Good luck

[grace111 in reply to X19Dave]

so glad for you both 🙏

[X19Dave]

Hi the hospital have said all that her results are good and they are happy her HB is still low but I think it can take the liver a couple of months to get that back right but others on here might know better.

Physically she is not great, she was bad before she went in due to the liver damage but as she has just spent about three to four weeks laid up in bed that has ruined what little muscle she did have now we have slow physio process to get it back but she does now look her old self with a fighting spirit which had totally gone

[dckimberly]

Dave, thanks for all the updates!

You have been through so much! Wow! I cannot even imagine.

I know you know that everyone here is pulling for your wife, and trying to lend strength good thoughts and energy your way too.

I hope things get better from here on out..you must be scared too, having her home after all this time..

but keep your faith up!

I know I sure am thinking about you and cheering you on as you go through this!

be blessed!

XXX