S4 cirrhosis, going through this totally on my own. Fibro 19.6. Came out of hospital with C Diff, kidney, bladder, chest infection while I was in
Didn't think I was overly drinking....what an ejit. Off the grog for 4 months. Husband couldn't give an ar#e. In fact when I came out of hospital after 15 days of no contact, he asked me if I'd had a nice holiday!.Nice init.
Upshot, going through this on my own. Nobody there to hold my hand. The squirrel outside my window seems to be my best option....poor thing
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SQUIRREL1a
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Hi SQUIRREL 1a it’s not an easy thing to do on your own so a hug is a lovely thing from Pat , the wife and I would send a big hug to if it helps but I think (without knowing your situation)maybe some life changes might help you. I don’t mean just the booze and maybe eating properly with a little bit of exercise, get someone that cares about you. I do apologise if you feel I’m saying too much but I think you know already. Please keep posting.
My heart goes out to you. Going through something alone is tough especially when you have been through a lot as you have. Have you spoken to hubby to see why he is so uncaring? This may seem strange but maybe he is frightened of what has happened to you and his callousness is his way of coping. If not, can your GP get you some counselling to help you cope? The BLT have different support groups you can join who meet online. Theses groups are really helpful for sharing and realising that you are not alone. You can register and then find the next Zoom meeting for any group you think might be helpful at britishlivertrust.org.uk/in... I hope you can find some help somewhere, I really do, Take care.
You will find a lot of like minded folks on here, with a whole range of experiences and advice to help you, with your onward journey, so "ask away" with any questions you may have.
Apart from disabled son who I solely care for, I am also alone on my own cirrhosis journey.
So I can certainly empathise with your situation to some degree.
I can concur with Breakfastbabe's comments with regard to the BLT's (British Liver Trust) virtual support groups.
They have an ARLD group that I belong to, and I can testify that it is certainly very helpful, hearing and sharing other people's stories.
It also really helps to know that you are not "totally alone" with this horrible condition.
If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 4pm on 0800 652 7330 (excluding bank holidays).
We also facilitate a range of virtual support groups for people living with a liver condition, their families and carers. If you would find it helpful to speak to others with shared experience, you can register to join a group here:
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