I have a hemangioma that could possibly be the cause of some symptoms I’ve had for the passed few years.
It has doubled in size to 6x5cm in two years.
I’ve been referred to hepatobiliary, anyone know what will be the next course of action?
Very little info online so hoping for some personal insight if possible.
I don't know whether or not you've seen it already but the British Liver Trust has a page all about Haemangioma at :- britishlivertrust.org.uk/in...
All the best, Katie
Thank you Katie.
What symptoms have you been having if you don't mind me asking. As they suspect a similar thing for me..
For the passed 2 years I’ve had upper abdominal pain (but more central) I passed out a few times too. GP thought gall stones and that’s when the hemangioma was spotted. That wasn’t a concern so had an endoscopy which showed stomach ulcer so was treated for that. More recently upper abdominal discomfort and feeling full just from a cup of tea and fatigue, breathlessness. This has become a bit more frequent over the last 6 months. Had endoscopy last week all ok there so I can only assume it’s the hemangioma. Seeing the hepatobiliary dr next week but not sure what the next steps will be.
Are you in a similar situation?
Anna
Yes, I've been having that same discomfort up right and a bit of fatigue sometimes but also rarely chills without the fever, assuming it's from the fatigue. They also assumed I had gallstones which wasn't the case. They assume it's either fnh or hemangioma.. I've had some high ggt levels as well but all other liver enzymes including tumour markers seem normal.
Do you know the size of the hemangioma?
What’s next for you?
Anna
About 9cm however, normally you shouldn't do anything unless it causes major health problems from what I understand. Have you done mri with contrast to confirm it?
They did the contrast thing during my first ultrasound. I’m seeing the consultant next week so I’ll keep this post updated.
Just updating as I said that I would. Saw consultant who said nothing to worry about but he’ll suggest a MRI just to check.
What next
Giant liver hemangioma 
What next?
What Next?
What is normal? 
