Liver

[Petrina_gmfc]

Hi all I was wondering if anyone on here has cirrhosis of the liver through medication and do you get a lot of scans on your liver and getting bloods taken a lot .

[Smegmer]

Been a while, but yes, over the years I have come across a couple of people on long term medications that have ended up in Liver failure. Long term as in decades.

[Petrina_gmfc in reply to Smegmer]

I just thought it was just through drink that you got that

[AyrshireK in reply to Petrina_gmfc]

Liver failure is what happens in decompensated cirrhosis and as we know only too well this can occur in completely t-total folk (like my hubby). There are many causes of cirrhosis that are completely non-lifestyle related. We don't know what the trigger for my hubbies auto-immune condition was - top suspect is a long term prescription of an antibiotic for acne. There are many reports of folks with auto immune hepatitis that has been triggered by things like long term prophylactic use of nitrofurantoin for urinary tract infections.

Sometimes a particular drug/medicine is what damages the liver. They sometimes label this as a DILI - Drug Induced Liver Injury.

As with all cirrhosis patients the guideline monitoring regime is 6 monthly ultrasound scan (in some cases CT) and 6 monthly bloods. If there is still ongoing liver inflammation from an underlying cause then bloods might be more frequent.

Katie

[Petrina_gmfc in reply to AyrshireK]

Hi how are you both doing I have not been on here for ages hope you both are well 💗

[LolaBow]

Hi, my cirrhosis was caused through long term medication taken over the years. Nearly 2 yrs ago I was diagnosed. I've had 2 Mri scans and 2 biopsies in the 1st year ( through doing a trial) Since then I've had bloods taken and fibroscan, and due for more bloods and scan Dec, Consultant said it will be every 6 months.

[Petrina_gmfc in reply to LolaBow]

Can I ask what trial are you on .I attend the Queen Elizabeth University Hospital Glasgow I was to go on a trial but I said no as it was more tablets to take do you ever go on the zoom meeting on line with the British Liver Trust.

[LolaBow]

I was on a resus trial, you took one tablet a day (may have been a placebo) I will never know.. The drug was to help stop anymore scaring for NAFLD, if the trial works after all the testing of it, it will be available for NAFLD patients. Going on the trial enabled me to see how bad my liver was, by having in-depth tests ie: MRI scans and biopsies. I also did a one day trial as they are studying if liver disease is hereditary . No I've never been on the zoom meetings.

[Petrina_gmfc in reply to LolaBow]

They are very helpful to you