Disturbing fibroscan

[Spagbol76]

I posted before on my family history of liver problems. Thought I was going to be ok when after 10years of abnormal bloods they finally are in normal range. However had my first fibroscan today and to say the least I am now at wits ends. Scoring not good. S3 and Fib 4. I have been seen by many people over the years to be told all is fine. Even went private only 4 months ago to be told no problems diagnosed. This is not a sympathy note or a blame game but just me trying to let my frustrations out.

[NieceByMarriage]

I am sorry. I would be frustrated too. Have they at least given you proper advice on how to deal with this from now on? (Diet/exercise/abstaining from alcohol/being careful about what prescription drugs you take etc)

[Spagbol76 in reply to NieceByMarriage]

I am seeing consultant on Wednesday so will be hopefully discussed. So cross that my scores was so high and was told I have cirrhosis after telling healthcare professionals that I have been having pain on the right side for years. Always told not liver as the liver has no receptors which I know as I done nursing training, but it feels like my ribs bruised. Cap score 337 and kpa 21 so this is how I was so shocked

[NieceByMarriage in reply to Spagbol76]

Yes, I am curious about the pain aspect. One of the symptoms of my Hep C has been occasional ripping/tearing pains in the liver region. Also a general feeling of fullness or sometimes bruising as you describe. I had some gynae scans thinking maybe ovarian cysts were to blame for the pains. Had my gallbladder out a couple of years ago, although I was also checked for subsequent complications with that, just in case. Just because the liver itself does not have receptors does not (to my mind) mean that there are no receptors of anything in that area. Interestingly, if I ever get pain anywhere (knee, neck, shoulder, hip...) it is ALWAYS on the right side, and of course pain can be referred all over the place. It is very frustrating when you "know" what is wrong with you (or at least where the problem lies) and are repeatedly told you are wrong. This has happened to me on more than one occasion - I had it with lung disease as well. That, and the Hep C, were only diagnosed because, like you, I persisted in seeking a diagnosis. I am only sorry that our persistence has been vindicated by a significant problem finally being revealed. Take care.

[mariusznowak]

I am very sorry. It is a treacherous disease. Did you have any symptoms that were indicative of the disease? Or just the bad blood results.

[Spagbol76 in reply to mariusznowak]

All I have is pain in my upper quadrum which all professionals dismissed. So many questions. My mum died of cirrhosis 13 years ago and my sister died of liver cancer only last year so I have been very vigilant about the liver especially as my bloods been abnormal. I am over weight but always struggled with this due to polycystic ovaries but I have changed my eating habits and go swimming three hours a week. Worried about my job now as I work in mental health in patients that is very physical.