My recent Fibrascan: Hello, I am new on... - British Liver Trust

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My recent Fibrascan

SwissToni91 profile image
21 Replies

Hello,

I am new on here.

I have Fatty Liver Disease and I

had a Fibrascan 4 weeks ago.

I am waiting for the report from my hospital but have found out that the hospital will not be contacting me until February 2024.

I have enclosed a photo of the result that i was allowed to photograph and wondered if anybody can interpret for me. Thanks

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SwissToni91 profile image
SwissToni91
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21 Replies
Grassroots112 profile image
Grassroots112

I’m not a doctor so can’t comment on what that means to your specific situation, but I went from a Kpa reading of 22.2 with over 320 cap score to a 9 and 144 in 9 months, mine was through a combination of heavy heavy drinking and an extremely poor diet. I have fibrosis which at one point looked like cirrhosis and even then my liver is scarred as that’s what fibrosis is, but totally reversed the fatty liver part, you can too. My aim is to reduce my kpa score even more and again you can too. Good luck!

Confused2024 profile image
Confused2024 in reply to Grassroots112

@Grassroots112 that is so fantastic - my situation sounds similar to yours! I was an 11.8 kPa in July and then end of Oct I was a 9.0 kPa all in 3 months - some of that is because of the abstinence from alcohol but I am feeling so great now having had no alcohol for 6 months!!! More energy and I am eating and exercising very well. I am soooo hoping to reverse the damage.

Question - on your ultrasounds did you ever have anything say nodular contour or mild irregularity?

Grassroots112 profile image
Grassroots112 in reply to Confused2024

That’s great, keep it up. RE my scans I’ve had nothing related back to me about those kind of things so I assume everything is OK in that sense, although I do have to have another US next week so maybe they have found something or maybe it’s just to find out what stage the fibrosis/scarring is or the six monthly scan thing.

What I’ve learned about scans and liver disease is nothing is ever 100% conclusive, not even a liver biopsy and what I do is I take for example my kpa score dropping massively as a sign that my liver is healing, getting better and is functioning so for me that’s what I work on, to keep it that way and try even more to make further improvements which you are obviously doing yourself with your good results.

My hep doctor is now saying it’s likely moderate fibrosis I have which is of course better than likely decompensated cirrhosis when I was in hospital, but he did add that my liver is now scarred as that’s what fibrosis is and I may have complications as a result of that in future which I already seem to have with spider nevis, droopy enlarged right breast and muscle cramps and pains associated with advanced liver disease/cirrhosis.

For me I think despite my good results, the damage I did to my liver was so bad, it will take a lot longer than 10 months or so to just become fixed, it’s going to be a forever thing Ifeel. One doctor said it can take years for a liver after heavy alcohol abuse to repair itself and the abuse I gave mine and my body, I’m always going to have one or two complications which can’t be fixed.

Good luck with your situation, carry on making improvements and well done on the abstinence.

Confused2024 profile image
Confused2024 in reply to Grassroots112

Did you have ascites? How come you are still getting complications if it is improving? They have said cirrhosis is gone now for you so just scarring - do you still need the HCC screening then? I thought once progress was stopped the complications also stop if they were not there?

Grassroots112 profile image
Grassroots112 in reply to Confused2024

I did, and jaundice, the complications could all be alcohol related, it can take years for the body to heal from alcohol abuse and even then you may never always be 100%. My doctor said it would be prudent to be seen again in six months for screening, I think it’s standard protocol. Again with liver disease. everyone seems to be impacted differently by it. Be it fibrosis or cirrhosis.

My doctors are great and obviously experts and can tell you how the liver works, what can happen if it is damaged and complications from that but they can’t say what will happen to to each individual and as he told me, my prognosis is excellent, it appears to be moderate fibrosis, but my liver is scarred still, is it cirrhotic? He said we’d only ever really know if they removed it and looked at it under a microscope.

He said scarring can’t be reversed, it can heal though. Mine seemed to be on the verge of full blown cirrhosis, but through not drinking, eating healthy and regular exercise, I’ve stopped the damage and the scarring has healed it appears to be only moderate where as it once threatened to just keep progressing. Have I done extra damage to my liver despite its healing? Very likely. Has it, however, found a way to remodel itself and found ways to perform its main functions well enough to not need medicine, therapies, drugs, operations, a transplant etc? Well I’m alive and well so I think it has. Can I keep it that way? I have to, I must and I shall give it my everything.

BritishLiverTrust3 profile image
BritishLiverTrust3AdministratorBritish Liver Trust

Dear SwissToni91,

This is a question that your own health care professional is best placed to answer, as only they have access to your medical records.

We suggest talking this through with your own doctor or health care professional in the first instance.

If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

Iro1 profile image
Iro1

I am suprised they did not give you a number, I am living proof NAFLD can be reversed.

10.8 to 8.8 and now lower hopefully as I have since lost 15kg and 7% body fat.

Diet is the start, then when diet is right exercise will follow.

You will WANT to exercise, not NEED to exercise.

I have taken myself and my wife off to Spain for the winter, I am a digital nomad and able to work from any decent internet connection.

Every day I eat well, I get some sunshine and I walk and I also make a point of swimming 2.5km a day. I purchased a machine that weighs me and analyses my body composition, I also have a watch that monitors my exercise and sleep.

I am doing everything I can to live and recover, my energy levels which collapsed when my loiver was bad are now better than ever, at some point I will have another fibroscan but for the moment I think my liver whilst never going to be perfect is no longer going to limit my life span,

regards

IRO

Confused2024 profile image
Confused2024 in reply to Iro1

That is great Iro1!! I posted just above that I went from and 11.8 kPa in July 2023 to a 9.0 kPa in October so I do not know what is normal for a reduction after reducing alcohol but that is a 2.8 kPa drop and I will take it! I am also doing my best and working away - did you have any irregularities on your ultrasounds? If so do you mind haring what they were? Thank you and enjoy Spain!!

Iro1 profile image
Iro1 in reply to Confused2024

Shiny, but I very experienced with scans and I always ask the operator to turn the screen towards me. It lights up like a beacon! So steatosis, but the surface was smooth 'as a babys bottom' in the words of the operator.Having said that my Cap was over 300 even with KPA of 8.8 so working on %fat in the body and visceral fat is where I am at the moment.

Because I had a gall bladder infection I had every possible scan. Ultra, CT, CT with dye in the blood, CT with dye through the gall bladder.

Plenty of flow, I watched the dye going through the portal watching carefully for any evidence of diversion, none.

Seeing that blood pump through into the liver unhindered was beautiful!

I think it became clear that what was cirrhosis was no longer cirrhosis!

Get the fat out of the liver. I swam 1000 metres I swam 2000 metres now I am aiming for 3000 metres a day.

The viseceral fat goes but it needs a BIG hit to shift.

Do not give up, there is plenty of life to live!

Iro1 profile image
Iro1 in reply to Confused2024

11.8 kpa is a nasty level, in my opinion, 9.8 still high (what is it with the 0.8s!) but better, much better.I have not drunk since 2018, it is poison and it will kill you, simple as that.

I got into coffee varieties much healthier.

Confused2024 profile image
Confused2024 in reply to Iro1

sorry that was a typo - 9.0 kPa....

Iro1 profile image
Iro1 in reply to Confused2024

Sorry fixated on 9.8!

Confused2024 profile image
Confused2024 in reply to Iro1

yes I was wondering lol - since you are an 8.8 we are only .2 away so you have given me a little rainbow of hope :) Trying my best to stay positive and not be scared sh&*less

Confused2024 profile image
Confused2024 in reply to Iro1

oh my goodness!!! So you had cirrhosis and they deemed it reversed...I am soooooooo hoping for that! Mine have been saying fairly homogenouse...they were saying nodular contour but the ultrasound on oct 30th did not state that so I am hoping and praying with all my might that means I am also in the process of trying to reverse...9.0 kPa should mean F2 but it does not mean there is no cirrhosis. The GP says I am very early stage but I do have ascites which apparently is possible - I feel fantastic and would not know anything was wrong. I am on diuretics and have luckily not had any more issues knock wood!

Here is what the last radiologist put:

IMPRESSION

Hyperechoic liver in keeping with steatosis, although there is minimal irregularity of the liver contours today and as seen on the previous study dated October 30, 2023. Allowing for this, underlying early cirrhotic change would not be excluded

I am most definitely praying this radiologist is correct on the steatosis!!! I don;t really understand all they see...

Iro1 profile image
Iro1 in reply to Confused2024

Look I was let down, I was diagnosed then ignored because I had try to take my own life, been sectioned under part 2 (28 days) and part 3 indefinite.I received my confirmation from a non specialist doctor in broken english in the secure unit.

I got ill with pain in my abdomen, no appointements were made by hepatology for me, no 6 month scans, nothing. When I followed up with the secretary to the consultant she rather inadvisely read out the email from the consultant 'Mr ..... needs to understand he has cirrhosis and that is just the way it is' I asked about my monitoring but nothing.

I nearly died of the gallbladder infection, I made no fuss because I did not want my family to suffer more by my complaints.

I genuinely thought it was how cirrhosis plays out. I collapsed at the GPs and he knew enough to realise it was the gall bladder. About 2 pints of puss came out!

At this point the scans began to indicate steatosis but no cirrhosis. In fact the radiologist told me he had seen cirrhotic livers and mine wss not.

I began to fight back and believe I could get better.

I went back to hepatology and was lucky to speak to a specialist nurse who understood that my case had slid down the back of the sofa!

As she said, either you have cirhosis and should be seen every six months or you dont and should go back to the GP

Within a week a fibroscan. 8.8 and I was signed off.

Mental health issues means very few folk ever believe you but do not give up.

Even a damaged liver will work if it is looked after. I am pretty sure mine has scarring but so does my skin (I managed to have a melonoma as well!) But it wont kill me.

Your working assumption should be like mine, diet, exercise, weight loss NO ALCOHOL. and you will die with it not because of it.

I sometimes wonder if 'cirrhosis" is considered a fatal disease because a minority of medical professionals says it is and folk literally give up! Eating, drinking no energy.

Do not let the bastards grind you down is my motto

Iro

Confused2024 profile image
Confused2024 in reply to Iro1

I love that and I am so happy to hear you are doing better! I am just giving it my all...this is NOT my destiny. I went through a bad bout of depression as well and leaned to alcohol which was the worst thing I could do. I truly believe this is reversible...mine went from fatty liver (which the Dr felt was not important to tell me) to cirrhosis apparently in 20 months...so I am hoping maybe I can turn it around in that time frame and am trying to stay calm....good lucky my friend!

Iro1 profile image
Iro1 in reply to Confused2024

obviously I sound like a bore but please avoid alcohol for the rest of your life, I have NAFLD but if I am honest trying to keep a roof over my family's head and my wife at home looking after my children (like a lot more men do than the wokerati media realise, we are apparently metro sexual new men!) with at one time 4 jobs, meant that I would think I deserved to drink red wine from lunchtime on a sunday.

All I harmed was myself.

Now I run an online digital business, with no commuting and can go to the places that benefit my health I no longer need it.

Try swimming, it really works. I have a garmin watch that tells me lots of metrics. Get a weighing machine with measures of fat on it. Create targets, you will not want to drink once you see your health improve,

For me diet came first, then my liver had more energy, I could literally feel it improving. I went from needing to exercise to wanting to exercise.

DO NOT DRINK!

Confused2024 profile image
Confused2024 in reply to Iro1

Thanks Iro - you sound like you are on a good path! I am feeling so much better - I have always been athletic and run alot...I have done half marathons and alot of 10kms. I have started strength training as I hear that really helps and cycling/swim as well are highly recommended. Working out and eating right is a breeze for me - the alcohol I don;t miss anymore 99% of the time and the 1% I do I knock myself on the head with what are you thinking???? Long story short I will give this my best go as I do not want my family to suffer...I will NEVER drink of that you can be sure!

Iro1 profile image
Iro1 in reply to Confused2024

I do body pump then a swim and a circuit class based on inclined machines. My skeleton needs looking after so do not run but play walking football.I used to surf a lot but my legs no longer allow me to stand up, started using a mat and swim fins. Eventually when i get strong ditch the mat and bodysurf.

I am an educator that suffered in an educational system that put actually help the child succeed was at the end of a list of 'initiatives" and various mamagement agendas.

Now I teach, nothing else, no meetings no bullshit, love it and I can live a healthy life without stress and commuting and being subject to constant management bullying dressed up as passive aggression

Iro1 profile image
Iro1 in reply to Confused2024

I am pretty sure I have early cirrhotic changes, I would be surprised if I did not.That is different from dying of cirrhosis.

This word cirrhosis is used in so many confusing ways, I have 'had cirrhosis' been 'on the cusp of cirrhosis' and recently ' you do not have cirrhosis and never had cirrhosis'

The F numbers are better, I was F3/4 now F2. You are also F2 as regards water retention drink more I drink 4.5 litres a day.

I did not have ascites but when I started drinking enough I certainly lost a lot of water my body was holding.

Good luck, i hopefully will get a fibro soon when I am down to 95kg and my visceral fat levels are normal.

Then I will go back to Mr W the consultant and explain that no I did not just go away and accept my fate!

Confused2024 profile image
Confused2024

I do not see the image...did it not have a number with kPa on it or CAP?

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