My lifeline : This is like a lifeline of... - British Liver Trust

British Liver Trust

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My lifeline

Faithfull profile image
25 Replies

This is like a lifeline of hope and I want to let everyone no I still need to see hospital dr 25th so I'm counting days down as I cannot put everything on here yes like a lot me life is consistent with no help but that ain't true is it as I have the greatest help warmth and love from all of you and without you lot I would have lost me mind me will to go on totally isolated but knowing that someone somewhere is there without even knowing anyone the real support is here . Thanks everyone

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Faithfull profile image
Faithfull
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25 Replies
Bozza70 profile image
Bozza70

Hi there. Good luck. One year ago I nearly died from ALD, I am 60. One year on I have given up Alcohol completely and joined AA. I am not religious but becoming more spiritual. I am 100% better in myself and have 6 monthly scans and blood tests for Cirosiss. Maybe this year I will go on holiday. Being informed helpd me manage the future rather than live as I previously did in denial. I am am starting the 8 week OU course (free) on looking after your liver. Let me know if you need any details. Take care and keep in touch.

Faithfull profile image
Faithfull in reply to Bozza70

Thankyou ,

Your right every word I'm doing my upmost to educate myself but not knowing what's what and I want to be free from constantly different dr s . I would be great full for info on the course thanks a lot

Keep in touch ,and yes we deserve to have some hope of future as living the way I am is not living just feel non existent

Deanna60 profile image
Deanna60 in reply to Bozza70

I’d more info on free course you are taking. I am so disappointed in my liver doctors and the help they give me. It’s like they just wait around for the worse to happen and the only advise is cut back on sugar, salt, and alcohol. If you would send me info I would appreciate it.

Bozza70 profile image
Bozza70 in reply to Deanna60

Hi. You can ow to register at futurelearn.com/courses/liv...

It is sometimes hard with busy GP’s, but my advice would be to push for a referral to a consultant so you can get a scan and full assessment. Let me know how you get on? Any problems with the course link let me know.

Faithfull profile image
Faithfull in reply to Bozza70

Thanks a lot for sending me that link .

Faithfull profile image
Faithfull in reply to Deanna60

You must live in my area what you just put says it in one !

To frightened to ask for my right diagnosis I'm mentally driven to insanity with to many things wrong with me that now it co - morbidities on my understanding to many specialists I have to see and my arthritis is not even being seen toss GP I went over the time limit double appointment I need a whole morning

O13B profile image
O13B

Hi they should be able to tell you more,good luck

Faithfull profile image
Faithfull in reply to O13B

Omg just see me spelling mistake I ment been to see GP not toss GP sorry about that

Beauport profile image
Beauport in reply to Faithfull

What a hoot you are faithfull! I'd love to toss my GP - into the stratosphere! xx

Faithfull profile image
Faithfull in reply to Beauport

Sitting here insane with innsomnia I read the middle bit of your reply ONLY!

I thought for a split second you had crush on the GP!

My fault completey I can't stop laughing at me own jokes .

Good job I read it over a couple times my next post is gonna be about the GP! Oh in this nightmare you do make me laugh thankyou

Beauport profile image
Beauport in reply to Faithfull

Laughter is the best medicine they say. There's always something to laugh at , isn't there? Love to you Faithfull xx

Faithfull profile image
Faithfull in reply to Beauport

That was really lovely reply, love to you and all. XX

Because of the laughing and joking and the the helpline lady and all of you I'm not scared to come on here and look at me posts that I can't even read , or being told off as I got confused thought I was on the complex PTSD forum it may have been other way round hence no replys.

Story of my life!

Beauport profile image
Beauport in reply to Faithfull

You're priceless Faithfull. It's great to be on here and get support and advice, isn't It, and sometimes have a laugh too. I'm going to be away in Goa now till 12th March so won't be able to reply to any posts till then. Take care and stay as well and positive as you can. xx

Faithfull profile image
Faithfull in reply to Beauport

What you doing then . Innsomnia sorry about that

Beauport profile image
Beauport in reply to Faithfull

I'm at Gatwick Airport flying off to India for 2 months, so may not be able to receive your messages

Faithfull profile image
Faithfull in reply to Beauport

Have a wonderful time be good be what're you wanna be but laugh and laugh . Hope to hear from you don't forget us lot x

GrannyDoll61 profile image
GrannyDoll61

Good luck on the 25th. My husband sees the transplant team on the 25th to find out if he is going on the list x

Faithfull profile image
Faithfull in reply to GrannyDoll61

Good luck to you as well!

It's the waiting game of tests and can't imagine what your both having to deal with but I be thinking of you both let me no how you get on .

19581979 profile image
19581979

Let's hope the 25th is a good day for everyone.

Gx

Faithfull profile image
Faithfull in reply to 19581979

Thanks . How you been ?

I gonna put a post in as soon as I get some sence out of the situation I'm still in of what is the diagnosis as come to terms with what I got and move forward .

19581979 profile image
19581979

Hi faithful

I'm ok. I have overall list a bit more weight. I will soon be at what is considered the healthier max for my height instead of overweight.

Had a good Christmas. Got a bit of a site throat today but going work today. Due to illness and holidays i have been away for a while so it will feel a bit strange.

Take care

Gx

Faithfull profile image
Faithfull in reply to 19581979

Take care of yourself G.thanks for keeping us lot going .

Glad you had good Christmas .

I did ,

and on the good news me son been clean from drugs 3months he never has tried ever and believe me when he and a lot of people think no way even me about me !but I nearly 3yrs clean no drink nothing so if I can do it he please God can he knows that and he can see what it's done .

19581979 profile image
19581979 in reply to Faithfull

Let's hope he continues to keep off of them. Well done you for the three years off of alcohol.

Take care

Gx

in reply to 19581979

I'm thinking of you all as you await results etc. Love to you all. Xxxx

Faithfull profile image
Faithfull in reply to

You are a diamond

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