Madelungs disease

[Roxamne]

I am interested in this disease (madelungs disease )and I have just had this diagnosis. It is also known as multiple symmetrical lipomatosis and launois Bensaude syndrome It is very rare and almost all those who have it also have a history of alcohol misuse

[JubileePenny]

Hello Roxamane,

Could you tell me more about this disease? I have read a lot online, but would appreciate hearing from someone with this diagnosis. I am female and 75, have had the buffalo hump on the back of my neck for years, and in the past few years, I have developed fat lumps around my neck. My doctor does not seem concerned. Twenty years ago I had an ultrasound of my abdomen because I had some fat lumps which have never changed. At that time, the doctor said it was 'fatty liver'. I have never been much of a drinker. I have a lot of neck pain and in both upper arms which they say is tendonitis /rotator cuff problems.

I look forward to your reply.