Another Diagnosis : Seems to be that... - British Liver Trust

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Another Diagnosis

Dldtx profile image
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Seems to be that with hep C Cirrhosis I continue to get more diagnosis. This time I was awarded with the Chronic myeloproliferative disease and thyroid disease ( it stopped working ) by the oncologist after ct scan. In short my white blood cells are 8x higher then normal and Monocyte count is 0 along with all lymph nodes swollen dr said they are reactive, no blood born disease meaning no one cell pushing this. So anyone have any ideas ? So far I will have my tonsils removed along with the adenoids and lymph nodes in the neck area and under go allergy testing. In looking for bacteria that maybe causing this I will under go Sinuplasty or endoscope for sinus which are mess up I guess. Along with upper and lower gi, yeah.

Thank you

DLD 🤠

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Dldtx
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grace111 profile image
grace111

usually high white blood cells mean your fighting an infection. what that could be i just dont know, anytime my white blood cell count was high i had infections. either hep c or blocked bile duct. you could look it up and drive yourself mad as it could be any infection in the body and start to worry if you read google.

Dldtx profile image
Dldtx

Thank you, The doctors have been looking for some infection, I had hepatitis C it’s now undetectable that is what caused my Cirrhosis , also I have had my gallbladder removed years ago. So I went to the oncologist since no other doctor could figure out why the white blood count is staying so high.Now they will start removing parts an pieces. I was curious as to anyone else having that diagnosis and what was found during this fishing process. I realize it literally could be 100 different things.

DLD TX

🤠

Hey Dldtx. Not an expert on the subject but due to my giant spleen I was poked and prodded for all things lymphoma leukemia and myleoproliferative related. As I understand it the white blood cells being high in infection is different than why they are high in myleoproliferative disorders. In infection they are high as they are trying to fight the infection. White blood cells often increase anytime we are sick. But in myleoproliferative diseases the white blood cells mutate and start multiplying quickly. The difference being that the white blood cells in myleo are not normal. They cant carry out their normal functions as they are programmed wrong in creation. Usually all cells have a single program. They do the job and then are terminated. But since these cells are misprogrammed they do all kinds of unusual things including not dying off when they are supposed to so they float around and float around and become more of the population than your proper white cells. But they are useless to the body and leave the immune system vulnerable. Like I said I'm no expert on the topic but I believe that's how that plays out.

By chance do you know if your spleen is enlarged?

Take care and keep us posted on how this plays out brother.

Btw I still have not gotten a definitive yay or nay on if or not I have it either but hopefully I'll find out in January when I see the hemotologist.

Dldtx profile image
Dldtx in reply to

Man your right on track. The oncologist diagnosed me with Chronic myeloproliferative disease an Eosinophilia. The MRI findings where a Moderately prominent chronic paranasal sinus disease. The proximal descending aorta and distal arch are slightly ectatic, up to 3.6 cm, the SPLEEN is mildly enlarged. Outside of that all is in range with Decompensated cirrhosis. My platelet count is low with clumping. So after that I visited a Ear Nose & Throat dr he said the mass in the nasal passage is not cancerous and tonsils and adenoids where enlarged but no operations due to bleeding issues will watch. The vascular surgeon said he is not worried but will watch the aorta it needs to be a 5.0 in size before he gets excited. So next up is the upper and lower GI with biopsy of esophagus and stomach for possible parasites infections.

Thank you

DLD TX🤠

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