Ct scan

[Scousepets]

Really annoyed at Liverpool Royal at the mo, my partner was diagnosed with ascites 4 weeks ago through ultrasound, been waiting on ct scan to see what's going on, only to get a call fron hospital to say it should have been today 11th...but we didn't receive no letter/text/email The hospital said quite a few people never got contacted 😠..so now more worry , God knows how long it'll be now...hope its not another 4 weeks, sorry for the rant, but we don't know what to do? No ones given us advice abt "Ascites " don't know anything, just left to get on with it....I'm so annoyed, sorry for the rant guys....hope not waiting to long again....xx

[lonmallin50]

My aseities have just back now after a couple of months with none l have emailed the doctor l am under in hospital secretary to see what they can do last time they give me diuretics tablets and they worked after a couple of days all the fluid had gone sometimes they put you on a drain not had that done yet l think that is if the diuretics don't work i would get in touch with the secretary of your doctor at the hospital for some thing to be done don't see why they need a scan first its quite obvious what is needed to treat it l let you know how l get on today when l get the reply from her you cant wait 4 weeks with out treatment its so uncomfortable with it

LON

[Scousepets in reply to lonmallin50]

Thanks x

[BritishLiverTrust3 Administrator British Liver Trust]

Dear Scousepets,

If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[DD75]

Hi Scousepets,

Sorry to hear the Hospital are messing up Liverpool University Hospitals are supposed to be excellent in terms of Liver related illness. I'd ring as suggested your partners consultants secretary. Does your husband take medication for anything else liver related ie lactulose or rifaximin?

I suppose through my newly gained knowledge because of my husband with ascites if it gets painful or unmanageable you need to ring Hospital so they can look at draining if diuretics prescribed ie spironolactone not working.

Sorry I can't be more help 😔 but I'd ring the consultants secretary or failing that the gastro ward your husband has previously been on if he's been hospitalised due to his liver condition.

Best of Luck

Thinking of You

[Scousepets in reply to DD75]

Thanks for your reply, no nothing at all from hospital, he hasn't been in hospital yet...he was diagnosed with ascites 3 /4weeks ago, and we haven't been given no advice, absolutely nothing untill we see nurse nxt month 4th June, so we don't no nothing , as fir the CT scan, that was messed up, but just received another appointment for 2 weeks time.... it's been a nightmare, as he's lost weight, and your mind runs riot, but I don't know if you lose weight with ascites 🥺..we don't know anything yet....about diet or nothing..been left in the dark..Thankyou for your reply, means a lot..sending love x

[DD75 in reply to Scousepets]

Hi Scousepets,I understand your worry my husband is in hospital again 😔. I'd ring your gp for advice and/or look on British Liver Trust website about ascites, diet and information best thing actually I forgot is to ring The British Liver Trust Nurses their knowledge is outstanding and they are best placed to advise their number is on the website 👍

Best of Luck don't suffer alone I've found this forum and the people on it so amazing and supportive through my husbands journey

Take Care x

[Scousepets in reply to DD75]

Thankyou so much, sending love x

[Sezbet]

I’m so sorry you’re going through that - I know the NHS are stretched right now, but really, how long does it take to send an email or text?

[Scousepets in reply to Sezbet]

Exactly, that's our frustration 🫤, xx