diagnosed with PBC today : Hi first post... - British Liver Trust

British Liver Trust

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diagnosed with PBC today

Eppy profile image
Eppy
10 Replies

Hi first post

just wondered if anyone has any advice

Diet drink etc

Side effects from ursodeoxycholic acid

Thanks

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Eppy
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10 Replies
AyrshireK profile image
AyrshireK

Hi Eppy, if you've not seen it already the British Liver Trust has a very detailed section on their website about Primary Biliary Cholangitis including a section on diet which may be helpful to you.

britishlivertrust.org.uk/in...

Best wishes,

Katie

Eppy profile image
Eppy in reply toAyrshireK

thank you

Readlots profile image
Readlots

Hi, welcome to the club! The PBC Foundation has excellent information and a helpline. Personally I don’t drink and just try to eat a healthy balanced diet. I haven’t had any problems with Urso, but my pharmacist gave me more information than my doctors and I started on a low dose and built up. I also split the dose and take some morning and evening with food. I’d recommend talking to a pharmacist to get advice. It can be a big adjustment being diagnosed with a chronic illness so be gentle with yourself

Eppy profile image
Eppy in reply toReadlots

thank you for your reply & advise really appreciate it 💐

caroldeb1967 profile image
caroldeb1967

In relation to Urso, has your doctor told you that it's for life? Don't stop taking it.

Eppy profile image
Eppy in reply tocaroldeb1967

no I wasn’t told it was for life

I have a follow up appointment in 4 months time to see Consultant and a blood test in 1month to check Urso is working

Thank you for you message

Kakey profile image
Kakey in reply toEppy

It can take a while for Urso to take full effect, so don't worry if your results aren't there yet after a month. You've been given great advice already, good luck with it all.

Eppy profile image
Eppy in reply toKakey

thank you

Lajn profile image
Lajn

Hi Eppy, I’ve been on Urso for over a year and I haven’t had any side effects. My review showed it is working and my consultant is very happy that I have responded well to it. As for diet I’m still working on that but generally I try to stay away from fast food.

Hope that helps x

Eppy profile image
Eppy in reply toLajn

thank you

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