Hey all,
This update is long overdue and i apologize for the lateness of it. TBH it's been really rough lately, emotionally and physically and just haven't mustard the energy to get to it. Here's a copy/paste of the biopsy report:
liver biopsy,
- Hepatic parenchyma of nodular architecture showing established cirrhosis. The portal spaces trapped in these nodules show a moderate inflammatory infiltrate, predominantly lymphoplasmacytic, without portal necrosis. These same portal spaces present biliary canalicular structures of normal morphology, without cholangitis or sclerosing lesion or ductopenia. Hepatic nodules present hepatocyte trabeculae of normal size, with macro-vacuolar steatosis evaluated at 40%, all without iron overload or intrahepatocyte cholestasis, or giant cells or binucleated hepatocytes. Absence of dysplasia or suspicious element of malignancy. We cannot assert the presence of Mallory's body. The histological appearance may suggest cirrhosis consisting of chronic hepatitis of undetermined origin (NASH? hepatitis of other origin?). To be correlated with clinical and biological data.
Maybe it's a coincidence but since the biopsy, my chronic daily symptoms have gotten a lot worse. The area where they entered the needle to perform the biopsy was sore and inflamed for a few months. I had liver tremors or flapping on and off that lasted a few months. That has diminished and is almost completely gone. However, i have been dealing with chronic headaches and a metallic taste for over 2 months now. No appetite and dealing with more nausea. Bowel movements are always an adventure. I can literally sit there for a half hour and lose all feeling in the legs lol...General malaise is becoming the norm with a slight relief after a bowel movement. On/off bladder and kidney issues. One day i have bladder pain, can't urinate..drizzling pee for relief....the next day i'll urinate full flow 10 times. I am down about 10KG since the biopsy, chest looks like its caving in....lost all muscle mass, but the gut/stomach is huge. Last ultrasound around 4 months ago showed no ascites. I also have a full-blown red patch rash on my upper back with spotty rash on my lower back and inside legs. I'm also exhausted all the time...no energy.
In other words, shit ain't getting any better 😜...what's making this worse is the look on my wife's face as she's seeing me deteriorate. She is there by my side for this ride and feels helpless, but the reality is she's the one that keeps me fighting. I owe her everything.
The biopsy was performed in late July and the sad part is after fighting for over 2 years to see a hepatologist (none in my area) i was finally able to see one after going to a private clinic and paying out of pocket for a fibroscan that resulted in a cirrhosis score. Those results along with a consultation request were sent to 2 hospitals. One refused our request, the other reluctantly accepted. The hepatologist that i ended up seeing told me in May that there was nothing wrong with my liver, to go back to my region and follow-up with a gastroenterologist to figure out my chronic issues. Go figure....
I have been chronically ill since 2014 when my immune system crashed hard. Since then, ive been slowly getting more ill. Might be too late but i'm doing my part to try to get better. I owe that to my wife big time. I stopped drinking (6 months now minus that one occasion) i eat (when i can) extremely healthy, only drink filtered water...doesn't seem to help. I know that i need to work on my mental health. I most likely have a lot more issues going on with me besides liver problems. My GP has been great but for the rest, i feel let down. I do not have a hepatologist to evaluate me. I did see the local gastroenterologist but she's overwhelmed and missed key points discussing the biopsy results. When i brought up possible transplant, she had no answer....then finally mentioned that she had no authority on that subject, and it needed to be brought up to a hepatologist...back to the drawing board 🤨
With all the physical symptoms im dealing with, my blood test results aren't bad. ALT, AST, GGT, Creatine, Albumin have never been better. However, triglycerides and bilirubin have progressively gone up. At this point, I'm kind of lost as what my next step should be. Maybe not lost...more discourage...i most likely will ask my GP, who i will see October 14th, to push back with the biopsy results and my physical symptoms, to try to get a hepatologist that will reevaluate me and go from there.
Sorry for the long rant and negative tone to it but i wanted to keep it real,,,this is how i feel. To all that have reached out, thank you so much and once again, sorry for not replying...difficult times. On a different note, if anyone has news of Danny (Zukosmiles07), i would appreciate that you reach out to me if that's possible. He helped me a lot when i first joined this forum and i miss him so much.
Peace out 👊
Rocko
Complications after liver biopsy
Biopsy - liver cirhosis 
Liver biopsy, not so bad
Liver biopsy 
Liver biopsy recovery
