Advanced liver fibrosis : Is anyone... - British Liver Trust

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Advanced liver fibrosis

Bazinga89 profile image
32 Replies

Is anyone having advanced liver fibrosis?

I am wondering is this compare as early stage of cirrhosis and have very similiar symphtoms as cirrhosis?

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Bazinga89 profile image
Bazinga89
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32 Replies
Smegmer profile image
Smegmer

Fibrosis is scarring of the Liver and is measured as F1, F2,F3,F4. F4 is known as Cirrhosis.

F1 and F2 are not considered progressive if you remove the cause it can heal over time.

F3 and F4 are usually considered progressive but can be slowed down if the cause is removed and will likely have some symptoms.

Bazinga89 profile image
Bazinga89 in reply to Smegmer

Thanks. I didn't get my score from liver biopsy but they said is severe bridging fibrosis...

MINTVCX profile image
MINTVCX in reply to Bazinga89

I think you wrote somewhere here that you have possible AiH. Was this confirmed? If yes, have you been ordered any treatment?About staging fibrosis I think usually Metavir (F0-F4) or Ishak (F0-F6) scale is used. Maybe try to ask your doctor or person who described biopsy?

Bazinga89 profile image
Bazinga89 in reply to MINTVCX

Biopsybsaid no evidence of autoimmune hepatitis but some of test are positive of that. My liver enzymes are normal no so they just gave me spironolactone and thiamine.I have my biopsy result but there is no scale there and my doctos said out of 10 my case is 8 and its severe fibrosis.

MINTVCX profile image
MINTVCX in reply to Bazinga89

I see, liver diagnosis is pretty challenging in some cases. Stay positive and follow your doctors' recommendations. Good luck.

Roy1955 profile image
Roy1955

I am no expert but to me advanced fibrosis and cirrhosis are the same thing!It's just a polite way of saying it!

Bazinga89 profile image
Bazinga89 in reply to Roy1955

I think same but my biopsy says no cirrhosis but severe fibrosis.

sophiaS1980 profile image
sophiaS1980 in reply to Roy1955

fibrosis isn't the same as cirrhosis

Bazinga89 profile image
Bazinga89 in reply to sophiaS1980

I know but lots of reserches says that severe fibrosis can be accepted as a early stages of cirrhosis...

sophiaS1980 profile image
sophiaS1980 in reply to Bazinga89

I understand, but saying that can confuse people with fibrosis. there is always chance to turn things around with fibrosis.

Bazinga89 profile image
Bazinga89 in reply to sophiaS1980

I didnt mean confuse anyone. I just asked a question becouse im not sure as well and i was wondering if anyone had same expierence 😑

sophiaS1980 profile image
sophiaS1980 in reply to Bazinga89

I am sorry, my response should have been to Roxy 1955 that told you advanced fibrosis is the same as cirrhosis but a polite way of saying it. I did respond to Roxy but end up responding to you. Fibrosis isn't the same, just remove the cause, and you should see some improvement.

Bazinga89 profile image
Bazinga89 in reply to sophiaS1980

No problem, I removed all the causes and I dont see any improvment and for few days i have huge bleeding from nose and spider like veins on my body 🥵

Fibro2021 profile image
Fibro2021 in reply to Bazinga89

Here is an interesting article about the possibility of reversibility of cirrhosis and bridging fibrosis. journal-of-hepatology.eu/ar...

Greengal314 profile image
Greengal314 in reply to sophiaS1980

Just an update - Now, medical information is saying that early cirrhosis can be reversed.

sophiaS1980 profile image
sophiaS1980 in reply to Greengal314

My doctor has always told his patients that cirrhosis can sometimes be reversed , mainly when alcohol is the cause.

Motik profile image
Motik

There are many cases in fibrosis/cirrhosis reversal. Me personally know people with f3 to f4 reversed to f2 (if we can rely on fibroscan accuracy ). So you have realistic chance to reverse it or at least stop the progression of fibrosis . There is a proverb: "Heal the mind and the body will follow". so keep your head up and live your life.

Confused2024 profile image
Confused2024 in reply to Motik

this is an old post so Motik I am not sure if you are even on here anymore - I just stumbled across this site. I have a fibroscan of 9.0 kPa and 1.73 m/s and my doctor is saying I have cirrhosis...I find it very confusing....but I did present with Ascites and do have a nodular contour. All my bloodwork came back in line pretty much within three weeks of abstaining from alcohol....I don;t feel like I am sick and have no other symptoms other than the ascites (which unfortunately is a big one) and then the nodular contour but my last ultrasound in Nov did not mention a nodular contour although the ones in the summer did...so confusing!

Motik profile image
Motik in reply to Confused2024

Hello there. Im still subscribed for this forum and I get the messages. So in your case there is a clear sign of liver damage ... Ascites. The only thing I can say to you is stop alcohol and forget about it. Get your self good diet and listen to your doctor.. this will help you for sure. I wish you more health in 2024..

Confused2024 profile image
Confused2024 in reply to Motik

Thanks Motik I am trying to do what you say - my fibroscan went from 11.8 kpa to 9.0 kpa but that was likely from abstaining from alcohol which I most definitely am doing!! Going from fatty liver to cirrhosis in two years seems unreal to me but I do have ascites and a nodular contour...the last ultrasound though did not mention the nodular contour so not sure why that would be? I am just going to keep working on getting my liver healthier and healthier and hope and pray that I can get in the normal range!! I wish you much health also in 2024!

Bazinga89 profile image
Bazinga89 in reply to Confused2024

It is possible, I got cirrhosis from fatty liver in less than 2 years. Remember that liver disease is growing in you for years mostly without any symptoms for a long time, symptoms are getting stronger when liver have enough.

Hi Bazinga89 - was this nose bleed recent? If you have are still experiencing a nose bleed then please seek medical attention. If it has stopped and you experience another bleed then you must seek medical attention. Sometimes when your liver is damaged your clotting can be affected which can lead to bleeding which is difficult to stop without medical intervention.Trust10.

Bazinga89 profile image
Bazinga89 in reply to

Thanks for response. I had nise bleeding around 3 weeks ago and yesterday I have it again. Its not huge but its stops and starts all over.

Hi Bazinga89, I would suggest that if you are bleeding and it is stopping and starting, then I would strongly suggest you mention it to your specialist - you could do that by contacting their secretary by phone/email. If it worsens, I would strongly suggest NHS111 or A+E. Take care,Trust10.

Bazinga89 profile image
Bazinga89 in reply to

Thanks, I already called secretary of my consultant.

Dplat profile image
Dplat

Hi I had a liver biopsy in March and it came back advanced fibrosis/ early cirrhosis ( f4) I lost 70 lbs since and it’s now f0/f1 . So there’s hope, it can get better . Good luck to you !

Bazinga89 profile image
Bazinga89 in reply to Dplat

Thanks and I'm happy for you :) I dont need to lose weight but year ago i had 70kg but now im 50, damage was from alcohol and very bad diet... mine didn't have score but there was severe fibrosis woth very severe damage. As I asked my consultant he said out of 10 mine liver is 8. So it could be early stage.

Dplat profile image
Dplat in reply to Bazinga89

Thank you! I wish you lots of luck , I’m sure it will get better if you do all the right things 👍

Onesmallstep1969 profile image
Onesmallstep1969 in reply to Dplat

Wow. That's an incredible turnaround. The body can do wondrous things when you give it a fighting chance. Congratulations.

Dplat profile image
Dplat in reply to Onesmallstep1969

Thanks so much !

muffins7 profile image
muffins7

Are your platelets low? Could be contributing to the nosebleeds. Might be something to ask your doctor about.

Bazinga89 profile image
Bazinga89 in reply to muffins7

Yup they are low as my haematocrit

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