I was pretty shocked when I weighted myself today and wondering if our scales are inaccurate! I've never been so heavy and blobby despite my abstinence from alcohol and efforts to be disciplined with food. In fact I eat a lot better than when I was a full-on drunk - fruit and vegetables daily. I've got an endoscopy next week which is my first for over two years. I'm not vain but very self-conscious in the changes in my appearance. My face looks like I have eczema plus I do have some rosacea and this red rash on my nose, cheeks and forehead. I'm pretty sure - not in a self-diagnosis way - this happens when I'm less disciplined with sugar and processed food. Just after views not unofficial diagnosis' of course.
Rapid weight gain: I was pretty shocked... - British Liver Trust
British Liver Trust
Before my Hep C I was diagnosed a type 2 diabetic a few years ago and was told about food groups, not too helpful for me, because I do not like fish or vegetables (except potatoes, baked beans and peas) but I changed my diet and cut out all the simple carbs that our bodies can quickly turn into glucose, cakes, sweets, biscuits, fruit juice (I thought it was healthy??? ) etc all the treats.
There are 2 groups of carbs, complex and simple. Complex carbs do turn to glucose slowly and even healthy foods turn to glucose. Things like white bread, white flour, potatoes (Basically any food that I like) are not good, even sauces and too much salt can make our weight creep up.
I am general good with my diet (but life without an occasional treat is unbearable) but my weight now (that I lost 50lbs), has plateaued and tends to go up and down. When I used to weigh myself daily I'd be surprised when my weight had risen but now I accept that it does not always go down, regardless of what I eat.
If my weight started to worry me, I'd speak to a doctor. But weigh yourself daily, do not expect losses every day and exercise a little more (I am lazy so I have to make myself do that )
You may find our publication on Diet and liver disease useful to read;
It may also be time to get a referral to a hospital registered dietitian to provide a specific plan too?
The only thing I was offered (which I went on) was a 10 session group weight management/ nutrition course. It was helpful and I learnt a lot but there was no individual plan so yes I shall bring this up at my next appointment. Thank you.
See point 6.
Are you sure the rapid weight gain, definitely isn’t fluid related? Maybe worth checking.
I understand that you were hospitalised a while back, presumably after you had stopped drinking or were you offered support? What stage of liver disease have you been diagnosed with, it would help to identify the potential causes of weight gain?
Thank you for responding. I. was taken to hospital in an ambulance on September 5th 2018 which was the day I last drank alcohol. I was diagnosed with alcoholic cirrhosis and have had a lot of unpleasant symptoms over the last three years. When you say support I’m not sure what you mean?
So are you compensated or decompensated, cirrhosis runs from stage one to four and depending on which stage, fluid retention is part of the symptoms?
Where you offered assistance from an NHS alcohol support worker when you were hospitalised, or had you already managed to stop drinking completely by the time you were admitted for the first time with cirrhosis?
I’ve been told decompensated but no stages have ever been mentioned verbally. I asked for all my notes some time ago related to my lengthy hospital admission and subsequent appointments and I didn’t see stages there either. I never - in hospital - acknowledged the cause ie alcohol and frankly as well as being very unwell physically my head was shot to bits. Additionally lack of or poor communication/information has caused me a lot of stress over the last three years.A man was sat by my bed one day when I returned from the bathroom who was a voluntary outreach worker from a local recovery organisation. I hadn’t asked for anyone and wasn’t expecting anyone so the brief conversation was rather awkward as I was still telling myself my reason for being in hospital wasn’t alcohol. Obviously since then I’ve come to terms generally and acknowledge the cause.
Regarding your eczema, you really need a referral to a dermatologist to establish a potential cause. Initially they look at possible allergies and the 1st question is usually have you changed your washing powder? Steroid ointments are often prescribed but not recommended for the face and these ointments can cause the skin to thin. There are many over the counter creams but considering you have cirrhosis, it's probably best to have a prescribed cream as some contain alcohol.
Thank you for responding. We’ve just moved house and have registered (today) with a new surgery. I’m hoping a different GP will either know or refer me on. This practice is seeing patients face to face now whereas our old one still isn’t which in terms of issues like this makes telephone appointments kind of pointless.
Great news you can get face to face appointments !
You can’t still? I assumed our previous surgery was the exception rather than the norm!
Its the norm. You are lucky. We can see a locum within 24 hours but not a GP
I’ve definitely put weight on since my abstinence from Alchohol and eating healthy fresh fruit and veg no sugar 100 cans less a week and out weight on !!! No takeaways etc baffling it’s Jason by the way from fb
When I was first diagnosed a year ago I got a rash all over my back, face, neck, chest and all over my scalp looked like chicken pox then they turned bright purple. A year later I still have them on my back, recently been to see a dermatologist and he said with my liver failure cos of my AIH I have acne and iv never had any trouble b4 with spots, they r awful but just 1 of them things to deal with 🙁 and don't get me started on the weight I'm crushed with how I look
I’m sorry for what you’re going though.
There's no need for a sorry lol just hoping I cud help out, when I was first diagnosed ya dont realise how much ur liver can affect ur whole body its mental, hope ya get sorted out to 😁
Same here. I had no idea how many functions the liver has. In fact I could probably have written what I knew about the liver on the back of a stamp. The British Liver Trust has been a great source of clear information.
Good for you onwards and upwards 👍
I feel your pain Phil. I was in same position early this year. I’m post liver transplant 3&1/2 years now. Obviously I’m taking many meds steroids, immuno suppressants etc.My weight went from 10st to 15:9 in December. Rapidly almost overnight. Tried WW and SW couldn’t lose an ounce. Had tests for internal blood loss, hypothyroidism, etc. Finally my daughter said “mum try calorie counting “ I did snd I started in mid March. I also walk (minimal) and have a PT virtually 3 times a week - I’m limited in what I can do but…
I’ve gone from size 20/22 December to size 14/16 now! I have lost 2 stone exactly I’m now today down another pound.
I’m eating healthier now.
Just be careful that it is fat gain and not fluid though fluid should be obvious. If nothing medical you may consider Cal Counting- if I could bottle this feeling I would
Good luck Phil I wish you well
Would take too long to explain here Phil. Basically a measure of food that our individual bodies need to survive …If you go to NHS nutrition and caLorie counting that should provide the information you need. If you find it interesting then ask your GP or Hepatology team time refer you to dietician/nutritionist
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