Hi everyone. Just got home after a 9 night stay in Norfolk & Norwich hospital due to Ascites. They drained almost 6 litres from me. I've been home since Friday and already I feel like the Ascites is still filling up. I literally, no exaggeration look 9 months pregnant.
I have been informed that they are now putting me forward for a Transplant assessment. I've had Cirrhosis since 2014. This is my 2nd bout of ascites and Ive recently had grade 3 varices banded. I've been abstinent from alcohol since 2016. I have a terrible stabbing pain on the upper left side near my ribs and I feel nauseated all the time. Probably from all the swelling. I'm dreading it's not something worse. It's not even close to my liver. Probably my anxiety and all the crying.
I am absolutely terrified of this news. Although I've always kinda knew it was coming. Transplant and/or death. I just turned 40 in August. I'm unable to sleep properly. Having nightmares. I hate to run on and complain because this was all my fault. Please stop drinking. Trust me I know its hard, but you don't want to end up like me at 34-40 years old. We all think it'll never happen to us. Reality just got real, real fast...... Anyway.....
My question is, what do I expect at the transplant centre for the assessment stage?? My nearest one is Cambridge Addenbrookes. I guess just be myself. Shall I write notes or a daily diary of my health, what will go on? I've got a ct scan tomorrow and consultant appointment in early October. I just wondered if anyone seeing this has been through the transplant process and could offer me any advice for this upcoming stage of my Cirrhosis. I'm worried also as he asked me if I have any social support and I really don't. I left my 15 year marriage to get well and rid myself of my addiction. Long story short.... Along with covid it's left me with well just me..... Does he mean like who will look after me after the operation. Will it affect my chance of being accepted onto the list??? If God willing and I am given this blessed gift of a second chance. I cant stop crying, I'm a wreck. I'm not quite sure why. It's good isn't it?? Going onto the list. It feels like I'm running out of time now. I'm scared of death at the best of times. This is breaking me.
So sorry to run on. I couldn't keep scrolling the internet, making my anxiety worse. Are there any support groups for people pre transplant? Idk
Thanks for reading x