Thankyou so much for the link . It is very informative . I’ve never heard of this disease .
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Nor had I !!
Am I ok to stay on here or is it not appropriate with the diagnosis ?
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Hope you stay and keep us updated on your treatments etc? All the best to you. Take care. Laura x
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Thankyou Laura x
What is your treatment?
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I don’t know yet because it’s so rare I doubt if the gps know anything about it . I’ve read up on it and you lose protein so will have to keep that in mind .
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