Results

Good morning everyone .

I’ve got my mri results today .

It has shown menitriers disease ( not sure of the spelling ) big folds in my stomach and liver .

I am also full of benign tumours .

I am starting treatment .

Does anybody know of this disease ?

Thankyou

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Hello,

I hope you will have an appointment to thouroughly discuss your diagnosis very soon. In the meantime this website may be helpful for you.....

rarediseases.org/rare-disea...

regards

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Thankyou so much for the link . It is very informative . I’ve never heard of this disease .

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Nor had I !!

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Am I ok to stay on here or is it not appropriate with the diagnosis ?

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Hope you stay and keep us updated on your treatments etc? All the best to you. Take care. Laura x

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Thankyou Laura x

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What is your treatment?

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I don’t know yet because it’s so rare I doubt if the gps know anything about it . I’ve read up on it and you lose protein so will have to keep that in mind .

I’m feeling ok just tired .