Hi everyone, I and still learning about my condition which is why I have posted a couple of times recently. I did get some positive feedback after my transplant assessment last week. I am no longer Decompensated and do not need to be on the list at this moment in time. I am really thankful of that!..I don't know what the future holds which is still unsettling but was told to carry on doing what I am doing. Only time will tell I guess. I am still learning about my own capabilities but the ailments I do have are unpredictable from one day to the next. Today being a particularly rough one.
I do hit 'brick walls' with my fatigue and keeping mentally assertive. This is frustrating and find myself agreeing to doing stuff that I can't manage. I think people want the old me back which is coming in dribs and drabs but not every day. My mind wanted to have a BBQ with friends in our beautiful weather yesterday but my body feels really rough today and I feel mentally strained because of this.
I knew the news from the assessment team was not a 'green card' to live a completely normal life but wonder if feeling good and bad erratically are to be expected.
Thanks as always for reading my post and for the knowledge and support that you give.
Take care of yourselves.
Mark