PBCers

[RammieLea]

Hi,

Has anyone been able to conceive with PBC or other health complications? If so was medication still given? Will it cause harm on you or unborn baby?cx

[Hidden]

Hi,I found out I had PBC when I was pregnant, although no one knows if I had it before I got pregnant, there’s a chance I did so technically yes I conceived with PBC. I started Urso as soon as I found out I had PBC and was on the highest dose possible too, I also took rifampicin but not for long as it didn’t do anything good for my blood results. My baby although born prematurely is absolutely fine and for the most part I trusted what my obstetrician was doing, in my case we just couldn’t get bile acid levels under control so had to get baby out 8 weeks early.

When prescribing medicines your healthcare provider will take into account what is best for you and the baby, whilst trying to keep you both safe.

[RammieLea in reply to Hidden]

Oh thank you so much sharing. Is your baby okay was the medication causing effects to the baby?

[Hidden in reply to RammieLea]

Yes he was absolutely fine, he’s now 2 and a half years old and doing really well. The only issues we had were due to his prematurity and nothing to do with the medication I was taking at the time x

[RammieLea in reply to Hidden]

That’s so beautiful, thank you for sharing. I’m so happy your son is happy n healthy...

[Sydgal]

Hi

I had my daughter four years ago without knowing that I had PBC, so to answer your question, yes can definitely Conceive with PBC.. because I didn’t know I had PBC back then ( Doctors didn’t know either) I was not taking anything... I wish I knew that I had this disease back then as I would have reconsidered getting pregnant as giving birth would have put my liver and body through alot of stress. I was told I had PBC for MANY years without knowing as the GP over looked abnormal blood tests results for many years!! ☹️

Plus because of PBC I feel fatigue therefore don’t have the full energy to play with my little girl as much as I wanted to.

But I am only speaking from my circumstances , I don’t have any family help, you’re family situation might be better.

Good luck 🙂

[RammieLea in reply to Sydgal]

I’m so sorry to hear about your family situation. I have a daughter I raised her on my own for 10 yrs I married 2018 I was diagnosed with PBC the same year I’m grateful him... I don’t know how I’d cope on my own...

My family are not that involved in all honesty. But I’m so blessed I have great people around me... there able to help with my daughter. Like you I’m not able to do much activities or outings with her..

[RammieLea in reply to Sydgal]

God bless you... I hope your able to get all the support you need... I’m always happy to talk if you wanted... this group definitely is needed xx