Dotandken decompensated liver cirrhosis - British Liver Trust

British Liver Trust

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Dotandken decompensated liver cirrhosis

Dotandken profile image
60 Replies

Well good morning everyone! Just got the call and am in ambulance en route to Kings for my transplant!! Scared but excited too!

60 Replies
Kakey profile image
Kakey

That's fantastic news. Best of best wishes to you xxx

Dotandken profile image
Dotandken in reply to Kakey

Thank you! X

Dotandken profile image
Dotandken in reply to Kakey

Fingers crossed!

Laura009 profile image
Laura009

All the very best ❤

Dotandken profile image
Dotandken in reply to Laura009

Thank you, just waiting now, I think it may be a long day!!

Laura009 profile image
Laura009 in reply to Dotandken

Will be thinking of you xxx

Dotandken profile image
Dotandken in reply to Laura009

👍😀

TT-2018 profile image
TT-2018

Good luck with everything, I hope that all goes smoothly.

Dotandken profile image
Dotandken in reply to TT-2018

Thanks, just have to wait now!

Dotandken profile image
Dotandken in reply to TT-2018

Thanks for your support!

Best wishes & good luck xx

Dotandken profile image
Dotandken in reply to

Thank you, staying positive!!

Lots of warm wishes from us here at The Trust

Dotandken profile image
Dotandken in reply to

Thank you,I'm still waiting and donor liver wont be here until 9pm. So fingers crossed that it will be suitable for me me! I will keep you informed. 🤞🤭

Good news hope all goes well, best wishes 👍

Dotandken profile image
Dotandken in reply to

Thank you, still waiting, but hey they haven't sent me home yet!

Millie2014 profile image
Millie2014

Good luck! I hope the liver is suitable and all goes well .

Dotandken profile image
Dotandken in reply to Millie2014

Thanks, me too!

🤞

Laura009 profile image
Laura009

Long day eh ? Big hug xx

Dotandken profile image
Dotandken

Been a very long day, and I just lucked out!! Unfortunately the donor liver had a tumour, so no good! 3rd time lucky for me!! Long ride back to Bristol when the driver gets here! Gutted!! Xx

Laura009 profile image
Laura009 in reply to Dotandken

Oh l'm so sorry to hear this. You must feel exhausted and disappointed. Deep breaths and wish you better luck next time .Laura xxx

Dotandken profile image
Dotandken in reply to Laura009

Yes, wasn't meant to be! My time will come, I'm sure now! Xx

Laura009 profile image
Laura009 in reply to Dotandken

It will. Stay strong and positive. Sleep well.Lots of love xxx

Dotandken profile image
Dotandken in reply to Laura009

Ok,scrap that, all ready to leave in five minutes and I got the call!! Another liver has become available!! How unlikely is that to happen!! So plan b,get some sleep and hopefully I will be woken to go to theatre! Night lovely people! Xx

Laura009 profile image
Laura009

Oh wow !!! Goooooood luck !!! Xxx

Dotandken profile image
Dotandken in reply to Laura009

Can't sleep now, tiredness has passed me by, waiting for the oncoming tsunami! Xx 🌊🌊

mattymoo33 profile image
mattymoo33

So sorry to hear it wasn't your time. I know just how you feel having been through it recently. It's a lot to process. Keep safe honey 🤗xx

Dotandken profile image
Dotandken in reply to mattymoo33

Thanks, I thought that 3rd time lucky would be mine, but hey ho! Next time!.xx

mattymoo33 profile image
mattymoo33 in reply to Dotandken

I thought the same in September, it was my "3rd time lucky". Hope you're ok 🥰

mattymoo33 profile image
mattymoo33 in reply to mattymoo33

We can but wait with our bag packed 😉

I pray you will read this post transplant good luck 🤞

Dotandken profile image
Dotandken in reply to

Wasn't to be! Thank you for next time!!

Lam1e profile image
Lam1e in reply to Dotandken

So sorry to hear that it wasn’t your time, but it will happen and I am sure very soon! I was 5th time lucky in December last year. Hoping you get a call again soon🙏

Dotandken profile image
Dotandken in reply to Lam1e

Me too! Thank you, big birthday in December would be great to start the next decade with a clean bill of health. Onwards and upwards. X

Lam1e profile image
Lam1e in reply to Dotandken

Just a little tip, but you may know this already👍 Take a small clear bag with you for the bare essentials ie glasses, phone, charger, pen, notebook. When you go to theatre you cannot really take anything and they are reluctant to let you have any big items in ITU but they will let you take small items. Everything is locked away and labelled on the ward for your return there! Normally if you have visitors they can sort that out but if not it might be useful🙏 Stay safe🤗

Dotandken profile image
Dotandken in reply to Lam1e

Thank you, good tip, the nurse did say they would put small items in safe, but it would be good to have them in a separate bag. X

Treeclimber62 profile image
Treeclimber62

Good luck to you remember take your time do as they tell you but try to do a bit of walking as soon as your able it's a massive operation but you will improve and start to feel the benefit it's great to be alive 😜

Dotandken profile image
Dotandken in reply to Treeclimber62

Thank you, unfortunately it wasn't to be and I am again waiting to go home!

Treeclimber62 profile image
Treeclimber62 in reply to Dotandken

Sorry to hear that your time will come as mine did don't get to despondent it will happen

Dotandken profile image
Dotandken in reply to Treeclimber62

I know, just keep swimming!! X

Laura009 profile image
Laura009 in reply to Dotandken

Ahh what a huge shame ... next time. They only want to give you the perfect liver xxx

Dogbot profile image
Dogbot

Fantastic news so excited for you

Stay Safe All

Dogbot 🐶🌈

Dotandken profile image
Dotandken in reply to Dogbot

Another false alarm! Just not my day! X

Dogbot profile image
Dogbot in reply to Dotandken

Oh I’m so sorry stay with it I haven’t had the first call yet but you must be so disappointed , chin up 😃Stay Safe All

Dogbot 🐶🌈

Dotandken profile image
Dotandken in reply to Dogbot

How long have you been on the list? And how are you at the moment?

Dogbot profile image
Dogbot in reply to Dogbot

I have only been on the list for just over a month but maybe I’m a bit eager and I have heard about the call’s that you just had, I just know how disappointed I would be. So at the moment I’m trying to do everything kings College tell me to do like I brought an exercise bike and trying the walking but with arthritis it’s a bit difficult but I’m going to get fit after my month in kings great people 😃👍. I hope you get a proper call soon, my thoughts are with you.

Stay Safe All

Dogbot 🐶🌈

Dotandken profile image
Dotandken in reply to Dogbot

I think life at the moment is really trying for everybody, but at least we are on the list, so I am trying to make a positive out of it, and consider the last three attempts as my trial runs!! I am determined that we all have a chance, so to keep on doing what you're doing, and hopefully next year this will all be behind us! Stronger together!! X

Lam1e profile image
Lam1e in reply to Dotandken

Each time I thought about the donor and family and hoped that if they donated other organs they had gone to someone and that I would get my gift when the time was right🙏

Glenfaba123 profile image
Glenfaba123

Stay strong 💪

Dotandken profile image
Dotandken in reply to Glenfaba123

Trying to! Thanks. X

Catlady1972 profile image
Catlady1972

🙏🏼 Fantastic news good luck with everything, so happy for you 🥲 Xxxx

Dotandken profile image
Dotandken in reply to Catlady1972

Didn't happen, just got home! Next time! X

Catlady1972 profile image
Catlady1972 in reply to Dotandken

😐 Same happened to me but second time around it happened and four months later it’s all going 👍🏼 please stay positive your time will come xx

Astro2020 profile image
Astro2020

All the best hope all goes well

Dotandken profile image
Dotandken in reply to Astro2020

Wasn't my time. Just have to wait a bit longer. X

Dodger1953 profile image
Dodger1953

I feel so much for you, I was diagnosed in the June of 2013, by the December 13, I was barely hanging on, late December I was told there was a liver for me but it was not to be, I was let home for Christmas but by the 27th I was back in Hospital, (The Freeman in Newcastle) then at 1'Oclock in the morning on the 1st of January 2014 I was told there was another Liver for me. The bitter/sweet miracle we all hope for happened and coming up to seven years later I am still here, It will happen for you, just stay strong.

Dotandken profile image
Dotandken in reply to Dodger1953

Well done you! I am ever hopeful, and stories like yours are a great boost! Xx

Millie2014 profile image
Millie2014 in reply to Dotandken

I'm sorry things did not go to plan. I hope you dont have to wait too long for the next call. Stay positive.

Dodger1953 profile image
Dodger1953

👍

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