PIP and decompensated cirrhosis

[EmmaThom]

Hi all. I have just been successful in receiving the highest rate for both elements of PIP. I answered every question based on how I feel when I get a bout of hepatic encephalopathy, which is unpredictable and varies in severity. For anyone going through the process I suggest you think of your worst days / symptoms and emphasise those as much as you can. Good luck if you are. I'm very happy to offer any advice on my experience

[Braveheart65]

had my assessment 3 weeks ago, still waiting to hear outcome.

[Petrina_gmfc]

Hi I was wondering did you tell them that you have something wrong with your liver

[EmmaThom in reply to Petrina_gmfc]

Yes, I gave them a full history, list of medications and my prognosis for decompensated liver

[Audiking]

Hi, just wondered how long it took you to get your decision after you had your assessment 😊

[EmmaThom in reply to Audiking]

They said it may take up to 8 weeks, but I received a letter from them after 2 weeks. They also pay from the day you made the initial claim. So I had quite a bit in my first payment which was very welcome. Happy to help any further - just send me a message

[Rshc]

my partner has just been awarded the higher PIP for both living and mobility and we were pleased and surprised that the claim went straight through without the requirement for assessment or even a phone call. We answered truthfully and sent in a whole ton of supporting evidence including about a years worth of blood results

[Grannysmiff]

Hello. My partner has PSC and a portal hypertension and also had bouts of HE which we wasn’t told until long after we left hospital. He is confused a lot and struggling daily. We applied for pip back in Feb this year after a long stay in hospital. He has been signed off work since and undergone transplant assessment. He was refused pip we completed a mandatory reconsideration and he has still been refused. It looks like we will have to appeal. Any advice please Many thanks

[AyrshireK in reply to Grannysmiff]

From decline of Mandatory Reconsideration there is usually only a tiny window of time in which to submit your request for appeal and you'ĺl need help with this - try Citizens Advice Bureau.

My hubby has auto immune related cirrhosis too and scored zero at face to face and got a knock back at MR stage. We went to appeal tribunal and he was awarded Enhanced Daily Living and points for mobilty but not enough for an award. On renewal he also qualified for basic rate mobility.

On application you really need to be thorough in all information you supply as to why they struggle with the various activities in the 'descriptors'. Provide all medical test letters and even you as his wife and carer can submit a report on what you help him with day to day. A supporting letter off consultant does wonders too.

Get help with putting in your appeal paperwork and good luck. It really is cr*p that genuinely ill people have to go through all this additional stress when they already have more than enough to cope with.

Best wishes, Katie

[Grannysmiff in reply to AyrshireK]

Thanks Katie. It’s just crazy. I feel like we are being disbelieved. I will contact my local citizens advice on Friday. When they are open for calls 🙄

[AyrshireK in reply to Grannysmiff]

I know, they basically call you a liar. Nurse at hubbies first assessment actually accused me of copy and pasting and making hospital letters up myself. Report from f-2-f was a pack of lies which thankfully tribunal saw right through.

Hubby now has an award till 2027 which hopefully takes us into his pension and PIP or Adult Disability Payment ( as it now is for us in Scotland) should continue.

Best wishes

Katie