I need HELP liver specialist

[Teri8672]

I was diagnosed 16 yrs ago with PBC all my ALTs are high bilirubin is still below 1.0 but my Liver specialist retired from UCSF over a year ago haven’t seen any liver dr since. I’ve called left a lot of messages still nothing. I live in California. Does anyone know how I can find a liver specialist near where I live. Seems UCSF doesn’t care. I have brittle bone disease now my spinal cord is where I’m having surgery after surgery because I’m loosing bone density. PLEASE someone HELP

[Kakey]

Post on a pbc site, or a pbc Facebook group. I don't think you are going to have much luck here, because of your location x

[Candy12]

Health unlocked have a PBC page, there are people on there from across the world. You may find someone who can advise, also the PBC foundation although based in Scotland may be able to point you in the direction of help.

[Hidden]

Hi Teri

We are sorry to read that you are having problems accessing a specialist.

The British Liver Trust is based in the UK and focuses on NHS provision of care, we do not keep a list of liver units outside of the UK.

Hopefully your own general practitioner can advise you where is best to be referred to.

Best wishes.