I’ve asked my drs for years to check on my liver as since I was a drinker I was always concerned about it. I never had any elevation in my liver enzymes that they told me about for 5 years now. I’m having horrible upper right quadrant pain for 6 months that continues to get worse to the point I feel like I’ve been hit by a truck every day I get up. It also consumes my whole right side of the body starting at my neck, shoulder and down to my groin and thigh. I’ve had horrible itching all over for about two years now. In May I had an ultrasound that said mild fatty liver, followed by a CT that said enlarged liver due to Riedel’s lobe but no mass seen. I in no way am wishing to have cirrhosis or worse liver disease but my body is screaming at me that something is wrong but my tests always come back ok. I finally got a fibrosure blood test saying my score was F0 since it was only 0.14 and the A0 since that was only at .05. My drs don’t want to investigate further but my pain is only getting worse. I know I had a history of drinking for years which I have stopped now but I feel like I really did some damage. Looking through the years of bloodwork I noticed my bilirubin was always elevated, the highest being 2.5 and the lowest being .08. In my research I’ve read that bilirubin is a major key for liver disease yet my drs seem to only care about the AST or ALT which are never elevated. My platelets for years have been in the high 300s-400s and since May have been on a steady decline and now at 296 which they have never been that low in my history as well as my WBC being in the low 4s and RBC low 3s which they have also never been in my history. No dr cares to help and only want to give me pain meds which I refuse because if this is liver disease then pain meds are just as bad as alcohol from what I understand. I’ve completely changed my diet for the better almost following a liver cirrhosis diet and I have never felt worse in my entire life. I’m currently dealing with horrible right shoulder and collar bone pain that makes me want to cry. Does anyone else have experience with this type of pain or a difficult liver diagnosis?
I’m not on here to be annoying and I’m so sorry if I offend or bother anyone by my posts but I truly have never experienced that pains that I’m having now and in 6 months I’ve had no signs of improvement, only things getting worse so I feel desperate for help.