HCC Patient Support Services- request from the British Liver Trust

As a group, patients with Hepatocellular Carcinoma (HCC) are not well-represented in the cancer patient community and are not fully understood in terms of their priorities and what is important to them at all points during their treatment journey.

The British Liver Trust is working with the support of Eisai to facilitate and empower the voice of liver cancer patients in order to gain an understanding of what is important to HCC patients.

Specifically, we would like to understand the expectations of, and experience whilst on systemic therapy, irrespective of specific agent.

To do this we will first develop a questionnaire with the support of both patient and healthcare professionals steering committees, and then secondly use the findings to develop a publication to provide the HCC community with the insights gained.

If you are a liver cancer patient on any systemic therapy treatment and could help provide feedback on the potential questions that may be asked in the questionnaire, please contact [e-mail] for more information.