Sorry for the intrusion but I wondered if this is usual: basically with the exception of complete inability to sleep, unbelievably deep and widespread bruising and feeling cold constantly, I was actually doing reasonably ok.
For last 9 days now, about 30 mins after eating a light snack basically anything but I mostly eat the following:, plain potato with salad, maybe fruit or a yoghurt or eggs, I feel seriously sick. Stomach lurching. Standing over sink. The only way to get any relief is to lie down. It’s getting to the point where I am not eating at all as I hate vomiting and would do almost anything to avoid it. Plus I’m scared that I’ll cause a bleed due to varices.
It’s not a bug or virus.
Is this quite common? If so how long does it last and how do I stop it? I take omeprazole daily.
I am now dreading feeling hungry.
Many thanks for any pearls of wisdom.
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Braveheart65
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My husband had episodes of overwhelming nausea and vomitting, prior to his transplant. It was often when his ascities developed, prior to draining. He needed to take zofran three times a day to get any food or protein drinks down. It resolved post transplant
Regret to say this is quite common, at least the unable to sleep, the being sick, and I haven’t heard anyone say that they aren’t cold - well except for one person! Oh but I didn’t really get any noticeable bruising - lucky lucky me.....
Well it lasts forever as far as I was concerned - until after the TP. Can’t remember/find what stage you’re at - sorry 🙁.
No, I would say just the opposite. The only time I feel sick is if I haven't eaten for a few hours. Sorry I can't be more help and hope you get this resolved soon.
I'm glad you've highlighted that you feel sick if you've not eaten. I thought it was my imagination as I too feel the same but with a dull ache until I've had a snack to ease the discomfort which I've only felt for about 6 months or so!
I'm sorry you are feeling so wretched Braveheart. I feel sick if I don't eat frequently enough. I can no longer eat raw veg, eggs, potatoes, yoghurt and a few other foods that were ok but now I can't tolerate the discomfort they cause. Nothing stops me wanting to eat though, and if it did I'd see my doc for sure.
I'm sorry to hear how you are feeling. I get some sickness but not as bad as you. I haven't pinned down what is causing it - if anything - it just may be par for the course of drugs, stress of transplant and the million and one things going on in your body post-TP! I've got a bunch of antiemetics which have varying degrees of success - if you talk to your GP, he may be able to suggest the most appropriate for your situation. It's a question of trial and error until you find the one that works for you.
Good luck on your journey and may it get better as time passes - Peter
Have you talked with the pharmacist or doctor about your medication? I couldn't tolerate the omeprazole, felt worse taking it than the underlying problem (GERD) it was meant to treat. Hope you feel better soon!
Ooh, er. Should have flicked through this before I posted a few minutes ago. I have backache until I eat or lie down. Nausea, sickness occasionally. Dreadful wind and bloating. I am sure it is the Omeprazole.
Chin up. You are wonderfully supportive people. Deb 😻
A few people on here have indicated problems with Omeprazole, I just want to say for me it has been a life changer and possibly even a life saver. I was producing too much acid and was permanently suffering heartburn etc. Acid reflux was almost a nightly thing. This caused damage to my oesophagus and possibly my lungs, Omeprazole stopped all this and reduced further damage, I still get episodes but its nowhere as bad as before.
Please talk to your GP before considering stopping this drug (there are alternatives) look into PPI's (Protein pump inhibitors). Damaging your gullet through excess acid is horrible and over time can lead to further issues. I have been treated for varisces but this is now under control my next session is due in a year (I was going monthly at the start)
Many, many thanks for all your replies, it’s so kind of everyone of you that you take the time to do so.
It’s a blo*dy odd state to be in. For those of you who know Steep Hill in Lincoln, I was chuffed to bits that I managed to walk up it on Saturday, albeit very slowly (overtaken by octogenarians-who at one point I almost knee capped for his Zimmer frame 😇). But I was determined and managed it. Sunday, I was unable to get off sofa and just about passed out by 5pm. How you can all stay so positive inspires me.
My next appointment with consultant at St James in Leeds is early jan, which is when he said they’d start to get me ready for transplant. Its surreal as in comparison to how I imagine people to be prior to transplant, I am surely fighting fit??
It seems to be one day gentle exercise and the next spent recovering. But I’m still breathing. I need to find a way to generate energy, dried fruit isn’t enough nor bananas.
I have a funeral to go to on Thursday, just the saddest set of circumstances imaginable. So I am grateful that I can open my eyes and hold my face up to the fleeting sun. I’ve decided to chase rainbows 🌈, it seems like a happy thing to do 😀.
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