Hi just wanted to know if anyone diagnosed Cirrhosis ever got better or is it once diagnosed and it’s down hill? Does anything help the liver ever improve or it just gets worse? Sorry, silly question but I’m really interested to know other people’s experience or thoughts thank you.
Hope you all having a relaxing day😊
Hope
Sorry but it can never get better.
It depends on the cause how long it will take to deteriorate.
Do you have a definite cause?
It will never recover but plenty of people live with cirrhosis for years and have no major problems
Diet is key to keeping it as healthy as possible no salt, cut down red meat, plenty of veg and fruit and water and please don't buy into any herbal supplements...
Is it yourself who has been diagnosed?
Yes Jojokarak, it’s very concerning as the medical staff never speak about diet. Although, you just try to start eating healthy. What’s your experience about herbal. Etc. What do you mean?
Thanks Hope
Doctors don't like you taking herbal supplements especially when you're liver damaged they don't know enough about what damage it could possibly do if you ever needed to go on transplant list they would take a bad stance if you wasn't just on the meds they supply
Which hospital are you under?
I’m at QEHB.
Hope
Great hospital 😊 a lot of people on here are at the same one x
I am under Leeds and I am post transplant 😊
Aww hope it all goes well. How long have you been diagnosed? At what stage do you have to get to before they decide for a transplant? I don’t think I’m at that stage at the moment. However, have been diagnosed with AIH for few years now. Only recently been told that I have stage 1 cirrhosis. I really need to do some research.
Hope
I got diagnosed about 7 years ago and I declined in a short space of time, I was in a coma for a month I would of probably had a transplant sooner but I had to recover from the coma first which took about 2 years after that I was in and out of hospital with numerous problems h.e. Ascites, infections, kidney problems it was never ending... They need to do a number of tests on you to make sure you are fit enough to survive the transplant I was put on the list in February 2016 and I had transplant October 2016 😊
But even when I was on the list I was on and off it like a yoyo I spent 4 months in hospital before I got the transplant I got cirrhosis due to polycystic ovaries x
A lot on here have cirrhosis due to aih and I am sure if you do a post explaining your condition you will get a lot of support from people who are experienced with this condition as I don't know much about it 😊
Hi Hope Cirrhosis effects everyone in different ways!..it depends on the cause and if you can treat the underlying cause!
There is lots of people that have cirrhosis and live an almost normal life if they have managed to stop the progress!
I have had liver cirrhosis for about 8yrs and had Hep C that was treated about 4yrs ago..I live a perfectly normal life with a few occasional symptoms!
Some people have had liver cirrhosis and managed to reverse the stage if it's in the early stages and the underlying cause is treated .
It can and does reverse as I said in many people..I actually think I am proof of that as I no longer get abnormal LFTs and a lot of my symptoms have improved significantly since I cleared my Hep C.
Try and keep yourself healthy and as far as at least I'm concerned and many others cirrhosis isn't necessarily always progressive in many people and they get regular checks with their doctor or consultant any problems that might crop up are able to be discussed.
Thank you ballie52, That’s very reassuring. I believe I’m still at the early stages. Haven’t been able to tolerate any immunosuppressant so on steroids. However, currently on a very low dose. Due to see my consultant next week they will be also doing an US and blood tests so need to wait and see what the results are. But recently I’ve been having some pain below my right rib which worries me. TC
Hope
Good afternoon Hope1011,
I can see all our lovely forum members are giving you support and I have included links to information on Auto Immune Hepatitis (AIH) as you mentioned this is your primary diagnosis
britishlivertrust.org.uk/in...
and also to cirrhosis
britishlivertrust.org.uk/in...
This may help you to form questions regarding your own personal stage of liver disease when you next see your liver specialists.
I hope this helps
Best wishes,
Trust9
I was diagnosed 2 years ago due to alcoholic abuse: in my case it got really bad very fast before it got better. Now my bloods are normal, except for low platelets, emery is back to normal . But I am sober
Hi Hope, if they can get your inflammation levels under control - then your Auto-Immune Hepatitis should cease to cause more damage. Normally, long term this is with an immune suppressant and there are many they can try.
Once the AIH is no longer attacking your liver then hopefully any further damage can be slowed or even stopped. There are members on the AIH facebook page who have had a diagnosis of cirrhosis due to AIH for 20+ years and are still no closer to needing transplant.
Each person is an individual though so one persons experience isn't necessarily the same as the next.
My hubby was diagnosed with decompensated cirrhosis due to AIH in April 2012 and could have died from a massive bleed from varices. Over the next few years he had treatment for the varices and other symptoms of cirrhosis, spent 10 months on liver transplant list and was delisted in June 2015. Currently well compensated, none of the major potential life threatening symptoms of cirrhosis and back at the watch and wait stage.
You are under the top hospital as regards AIH treatment and research in the UK, their doctors have gone on to become professors and they do know their stuff. The UK AIH support group is heavily supported by QEB doctors.
Best wishes, Katie
Thank you Katie for your detailed post. It is very reassuring to know that there is a chance for a slight reverse if not more. I am under qebh too so hopefully in good hands. However, sometimes I feel that due to perhaps staff shortage there can be slight delays in following up etc. TC
Hope
I was told 3 years ago that I'd be dead in two years if I didn't stop drinking. That was 3 years ago and I have seriously cut back but I haven't stopped completely, although I really think I should. 50 years of drinking without serious problems is a difficult thing to see beyond! I understand that the Cirrhosis (scarring of the liver) doesn't really heal. But I've been told that I have normal liver function.
Don't stop till you drop. Stop before you drop or it's to late. Ignorance is bliss.
In hindsight I was given an early warning I didn't heed. I had three months without poison foolishly thinking I had detoxed or repaired but in the end the damage was done. If your fortunate enough to have no issues good for you, but my advice is in your thoughts "although I really think I should." Don't like me continue until you have to utter my words Ofeckman I've got Cirrhosis, then stop.
It's not easy but gets better. I wouldn't thank you for a drink now. Good luck. 💪
Ops sorry should have read your history first. Suck egg's.
PS May I just one sobering thought. Whilst ny Consultant was performing my OGD I said honestly I've been nipping out for the odd 3 pints. You can't you've got Cirrhosis. That's how I was given my diagnosis.
Who said you can't teach an old dog new tricks.
😬
If you think you should stop drinking,just curious,why haven't you? You read all the struggles people go thru on this site and you still choosing to drink. "you have been told I have normal liver function" I don't know who told you that,but get you copies from the doctor ,besides normal liver function labs doesn't mean you don't have liver disease.
I was told during a recent meeting with the liver specialist at the hospital that I have normal liver function. There are various reasons as to why I haven't stopped drinking completely - it can be quite complicated I think ..
Your recent meeting having normal liver function, such as normal blood work, doesn't mean much, only mean your liver is functioning ok at the time....I see you have a diagnoses of cirrhosis from your previous post. What ever your reasons are, which you seem to think is quite complicated isn't so complicated. The complication of all this is to seek help for your drinking. I see you are 72, young , which means ,if you stop drinking, you could be around many more years. Good Luck.
Hi my wife 56 was diagnosed with decompensated liver disease back in Jan this year she was in hospital for weeks she could not walk and had Ascites once she got out I did a lot of research and I put her on a plant based diet, No dairy also I gave her some vitamins if you are interested please send me a personal message, I did purchase a infrared sauna to help with recovery and built up her steps and now she can do between 10 to 12,000 per day which is more than she as done for years, her last 2 blood tests are almost normal but the only issue and disappointment was the fibroscan result of 47.5 kPa this shows advanced scarring but we are hopeful that her next fibroscan at Guys Hospital in Jan 2020 will show improvement, they say this won't improve but we will see, I have now purchased a iMRS 2000 (Pulsed Magnetic Therapy) and this seems to have helped a lot with her lower back pain, I can honestly say that I thought I was going to lose her in March but through her hard work and determination things are very much improved and hopeful that she will reverse the staging of advanced cirrhosis. (we will see)
Best of Luck
Hi - it's nice to see somebody else here who is open to holistic and alternative therapies. My husband has reversed his liver disease using LifeWave phototherapy patches that activate and regenerate stem cells by activating a copper peptide in the body through light that activates our body's own stem cells. The activated stem cells go to the part of the body that needs it the most. I almost lost my husband twice with bleeding varicies. Of course the body can heal itself. I get so angry with doctors who say it is irreversible! Hepatologist didn't even need to see my husband after getting the vastly improved blood results and scan. Scan went from being cirrhosis 6 months ago to being "mildly nodular" now. Full disclosure I'm an independent distributor of LifeWave patches. My post has been taken down before so I won't post a link but anybody who is interested and wants a link can pm me. I suggest joining and buying at wholesale. Not expensive at all.
Hiya Thanks for rely very interesting all I can say is the there is so much frustration regarding the NHS if your not pro active and doing a lot of research and helping yourself then things can get bad for a lot of people, because it is only yourself that can beat whatever you have and being positive will give more benefits than most products and machines that may help, I can see why people just get left on the shelf and deteriorate because it seems like advanced cirrhosis is like a death sentence, my wife was suppose to be seen by a dietician and we are still waiting over 6 months ago this is why you cannot sit back you have to help yourself., unless you are in such a bad way then have to go to A&E that is the only time things seem to get done fast, otherwise its see you in 6 months for your next appointment which does not seem helpful to me when you want to know that your bloods are improving, why can this not be done every 2 months ? My wife's iron levels were off the chart at 1950 in march but now its almost to acceptable level, all the water she drinks is filtered then magnetised and she also mixes organic apple cider vinegar, she takes quite a few vitamins which I think is helping her and we are both hopeful that she will see things improving with her fibroscan in Jan 2020
best of Luck
Iron levels off the chart as in high? My husband's liver is high in iron but his blood isn't. Highly recommend googling root cause protocol. It talks a lot about iron levels.
serum ferritin 1950 ug/L
I'm still in the early stages of learning about that. Good luck to all of us!
I don' t understand what you are saying, your husband is high in iron but his blood isn't....Are you saying, he has high iron levels on his blood work but still show signs of anemia just like he doesnt have high iron? Please explain, sorry, i don't understand.
Yes, I think that is what I'm saying. Apparently some people store iron in their liver and other organs and it still shows low in blood tests. I'm learning more in therootcauseprotocol.com about balancing iron, copper and magnesium levels in the body.
That is usually anemia of chronic disease due to many things such as alcohol, diabetes and other chronic health issues. these conditions can cause inflammation and put the iron on lock down. when everything settles and inflammation is down but still high, i would talk to his hept. about doing a blood letting to get rid of some of the iron if it doesn't go down after the inflammation goes down. GL
My husbands hepatologist isn't really interested in him as he doesn't need a transplant. The haemotologist wants to ADD iron and blood which we just don't believe is correct. Taking a more holistic approach which none of these specialists do but will get a blood test through therootcauseprotocol.com when we can afford to do that. One of the things he writes about is the myth of anemia. But yes we are doing things to reduce inflammation. Bloods are improving so we aren't worried right now.
popupstands, your wife is a very lucky lady to have you around to help her. You're so right about taking things into your own hands. My husband wasn't deemed ill enough by the NHS to be considered an emergency, despite losing a lot of weight, losing his voice and walking around with ascites. His appointments were few and far between (there seemed no urgency), although we managed to get one brought forward (I was so worried it would be too late otherwise, that was how bad he seemed to me). Even then there was so much complacency, eventually even when he was an emergency (he was eventually admitted to hospital with drug-induced liver damage) the NHS did very little to help him. He died in the end, unnecessarily in my view, despite starting to make a recovery (the drugs had left his system by this point).
Well done! Keep up the very good (and hard) work. I wish you both the very best.
Thank you for your comment and I am so sorry for your loss, but I am the lucky one to have a wife that as shown me how strong you can be when faced with her situation, I really am proud of her and how she handles things, I have gained so much knowledge regarding how to heal our bodies and mind after the loss of my Dad and brother last year, I would almost challenge and question the Doctors in every circumstance now and there must be better ways than just giving drugs that seem to cause many other issues, but you cannot beat the establishment so in silence you have to learn what you need to, I remember growing up in 70s and there was NOT all diseases that seem to be killing so many people today, they are estimating that it won't be 1 in 2 people will get cancer in their life in the next 20 years but it will be every body will have cancer, this cannot be right so the question must be "What as changed" and I honesty believe its diet and exercise, its really not that complicated to solve.
it was almost a year to the day that we got married in Jamaica and we knew nothing regarding her illness, we had the most amazing time but its strange when you look back and there are little signs that we all ignore she was feeling tired, didn't eat much but still could not lose weight and she had little memory issues and falls and yes she did go to doctor and have bloods tested but everything seemed ok. it was only late January this year when we noticed her eyes were quite yellow, and feeling unwell so this was the first knowledge of issues when she was admitted to hospital.
The only thing the consultant wanted to do was confirm that she had End stage Liver disease and do a unnecessary Biopsy which she refused, she had almost 5 litres of fluid drained and I got her home as quickly as possible and it is through her Hard work and a little bit of Knowledge that I have learnt, which really is a lot common sense that she now leads almost normal life, she can walk 5 miles without any problems and she is a changed woman, and everything is going in the right direction, things have been quite hard financially because I spent as much time looking after her, but there is light at the end of tunnel and we are hoping to go back to Jamaica in the next few years.
Regarding her diagnosis she was told its probably Alcohol related Liver disease, although she was not a heavy drinker I would guess 1 to 2 bottles of Wine per week the Government need to make us aware with adverts, because the way my Children drink and probably most of the young adults today we are in for more serious problems that we can imagine.
We can all take steps to help ourselves live better life's and trying to implement the changes required, I still struggle to change my diet but I am trying and hopefully I will get there soon. but I know what I need to do and that's half the battle.
Kind Regards
Hi, please could you forward me a link for the Lifwave Phototherapy Patches.
Kindest regards,
Annie
How would you use them for cirrhosis. I just signed up for wholesale and ordered patches, but I’m not sure what to place where for cirrhosis.
They will come with instructions showing placement suggestions. But in addition to those suggestions my husband alternates and puts x39 directly on his liver location. Did you buy others besides x39?
I also bought ice waves, glutathione and carnosine.
Great! IceWave is for pain and you put the tan patch on the point of pain and the white patch a couple of inches away in either the 3, 6, 9 or 12:00 position from it, Carnosine is great for heart, eyes, lungs and other organ health, Glutathione helps with immune function and clearing toxins and there are various places you can put that. It comes with a booklet showing where. My husband also puts that on top of his liver. They will all come with instructions but if you go into your back office and click on a particular patch you will see when you scroll down usage FAQ and details as well as testimonials. Whoever sponsored you should provide you with a lot of good info. It wasn't me as I don't see you in my back office. I'm always happy to help though.
Thank you for your help. I ordered my patches before I found you. I’m in a group with lifewave people on fb, but if I mention cirrhosis, they ignore my questions. I haven’t found them very helpful.
What country are you in? Here in the US we have to be extremely careful about mentioning actual diseases and we certainly can't say it cures anything, just that it relieves symptoms. You might want to change your question from cirrhosis to liver issues or "symptoms of liver issues". I'm happy to be friends on Facebook and then I can invite you into some of the groups I've found helpful. I'm Dianne Kent Purdie on Facebook if you want to friend me. We can also message from there. I have a Facebook business page for LifeWave too. It is facebook.com/betterhealthna... I haven't posted in over a week now but I try to post good info there and I believe I posted about the liver a few months ago.
I’m in the US. I just wish they had answered me at all. I just wanted to make sure I was being safe. If they didn’t want to address the cirrhosis, they could’ve said that and asked for symptoms. I appreciate you responding to me. I’ve friended you and followed your page.
I am a Lifewave distributor too! My son has alcohol related cirrhosis of the liver and I just came across this. How is your husband doing? Did he wear the X39 for 12 hours over his liver then alternate with glutathione patch for 12 hours?
I would love to connect with you on Facebook
My husband is doing great! He wears the x39 patch both on his belly and his liver (we alternate). He also uses glutathione patch but hasn't put it on his liver yet. That's an excellent idea! We both wore glutathione on our chest all during Covid with excellent results. I'll send you a private message re connecting.
What patches were used and where were these placed?
Hi Bree-p X39 directly on the liver or on the belly - 2 finger widths below belly button. There's a lot of good info from my group (which includes health care practitioners) at liveyounger.com and I'm happy to help you buy wholesale if you aren't already. X39 helps your body activate it's own stem cells using phototherapy.
Hi, so glad to hear your wife is doing well. You are a diamond, looking after her, the way you do. Please can I ask, where can I purchase a iMRS2000 Pulsed Magnetic Therapy for my son?
Best wishes,
Annie
You can tell you love your wife a lot. She is lucky to have a husband that sill go the distance for her.
Yes!
You can have lots of hope.
My liver enzimes decreased HEAPS after the diagnosis.
I began taking a very good supplement of Wellness (ULTRA),began eating super healthy:
Beetroot and pomegranate juice, blueberries, veggies, stopped the sugar, ate kale and broccoli and never ever drank a single drop of alcohol. Investigated the best foods for the liver....etc
My Dr. told me that my liver was at the beginning of the disease...but I am cirrhotic...no doubt about it...
Have faith and take care of your health in general...Read in PubMed about foods good for the liver....(Coffee for example)….and eat things that can heal you....it is called: FOOD AS MEDICINE....
My cirrhosis is a result of diabetes + fatty liver....
Hi livers are amazing at regeneration, they only need to give 1/3lobes for a whole liver transplant. I have churrosis for2 years, my liver will probably never fully recover, but by working for it, ie diet,exercise and rest, my liver function tests are normal and stable and I feel really well well. So my advice is a healthy well balanced diet, zero alcohol or drugs that require your liver to work hard (it needs max rest) and increasing exercise like walking or swimming, and plenty of rest. Most importantly don’t eat prosessed food, livers really don’t like salt!!
Look after your liver like your greatest possession and it will try it’s best to keep looking after you.
Don’t listen to “never talk” there is always hope for a breakthrough in medicine. 35years ago liver transplants were very hit and miss, now look at them!
Thank you Cat-B,
You say that your liver tests are normal. Do you still take any medication or not? Thanks
Hope
My partner was diagnosed with alcohol-related decompensated cirrhosis in October 2017 after having been rushed to A&E, vomiting blood and not being able to breathe due to severe ascites. The emergency doctor was so concerned about his prognosis that she asked that I contact his daughters to come to the hospital urgently. He survived that initial admission and was discharged, still very weak and poorly.
He gave up drinking immediately, but was still suffering from ascites and severe muscle wastage, with no appetite due to the ascites, so it has been a very long road to try and build his strength up. He was not allowed to take Spironolactone, as his blood sodium was low, and had to return to hospital for drains every 4 weeks for several months, and developed an umbilical hernia from the fluid build-up. He had a follow-up with his liver consultant in February 2018, who was pleased with his progress, and pronounced that his liver was compensated again.
Cut to the end of March 2018 - the umbilical hernia became incarcerated and he needed emergency surgery, which, although successful, caused the liver to become decompensated again, and left him with a low-grade infection in the fluid in his belly.
After a final drain, things settled down again, with antibiotics to combat the infection, and slowly, his strength returned. At the beginning of 2018, he needed a wheelchair to get to his hospital appointments, and now he can walk miles.
He saw his consultant earlier in the year, and in her words he is "in excellent health" and his liver has "complete recompensation". In the future, he will have 6-monthly ultrasounds and be seen annually in a nurse-led clinic.
That’s really good news. While reading the post I was getting very nervous. But great ending. Thank you for taking the time out. 
I was F4 21 diagnosed and gave up alcohol and fatty food and sugar cause I’m diabetic 2 and had a second fibroscan a year later and was an 8 f2. She said that the scan before picked up 2/3 inflammation and it had gone. So it depends on what scan picked up and it’s wirth taking it serious and see what happens in a year. I still have some sirrosis but the rest of my liver can cope as long as I look after it.
Hi Hope. The most important thing is stop drinking.Healthy diet and staying positive are equally as important☺I don't focus on negative comments like I did when first diagnosed as it brought on depression. I stopped drinking a year ago and I have completely changed my diet and feel absolutely brilliant. Most people say I look healthier and happier than I was before. I hope you find a good specialist who can guide you through the tests and medication and I find going with a list of questions is easier than trying to remember what I was going to ask. Everyone is different and unique and what applies to one person isn't a one size fits all so focus on you.
I wish you lots of luck and hope☺
I had hep c which resulted in cirrhosis which I lived with for 2 years but it was not going to get better. Eventually had liver transplant 6 years ago and have not looked back. Will help you if you follow guidelines on lifestyle. Hope this helps and best of luck.
Cirrhosis 
Cirrhosis 
Cirrhosis 
Husband with Cirrhosis 
Cirrhosis / not cirrhosis
