Liver cirhossis.. Hepatic encephalopathy enlarged spleen and varices

[Paisley71]

Hi, my names Brian, and I have got liver cirhossis.. I am 48 years old.. I have had a liver problem since 1992..which sadly turned to cirrhosis 12 years ago... I have had and still got varices which bled in July 2016..and left me in a terrible state.. The weight fell off me.. I was anemic.. I suffer hepatic encephalopathy.. Due to toxin bulid up which makes me pass out... My spleen is enlarged too..... I have also got COPD... I WAS ON pip in 2014 but I lost it.. I appealed it but lost it... I am fighting a losing battle...

[ThreeSmiles]

Hi Brian

A very sorry story indeed.....What sort of “ assistance”you need please?

Miles

[mattymoo33]

Hi lovely. You aren't in this on your own. There are fabulous people on here who will share their wisdom. Please don't give up. You have done the vital asking for help.

Keep posting for help 🤗

[Hidden]

Dirty rotten scoundrels. Privatised / Simple Serpents sitting there in their Ivory Towers. Stroking pen pushers. ✍️

[Hidden]

AyreshireK has replied to others about a support service that helps you get the benefit back that's been taken away. There's a fee. I think it's £18.00. These people understand the benefits system whereas the DWP employees often do not. I'm going to see if I can find what Katie posted and I'll put the details up for you if Katie hasn't already done so.

[AyrshireK in reply to Hidden]

I guess you are referring to my use of the Benefits & Work website. benefitsandwork.co.uk/

I don't know how their guides can help in this case, they lead you through the application process from end to end including appeals etc.

Katie

[Hidden in reply to AyrshireK]

Thank you Katie. It was going to take me a long while to go through your previous replies! My understanding is that circumstances change, and sometimes the claimant hasn't expressed his disablement as fully as it could reasonably be set out. That's why I think it's worthwhile for Paisley71 to check it out. Have I overlooked something? It happens.

Thank you for answering. I appreciate it.

[Hidden in reply to Hidden]

That's so wonderful of you Filstines! I do hope you or Ksties can assist! I'm very angry to read what has happened when he's so poorly Grrrr

[Hidden]

Hi Brian,

Welcome to our forum where we hope you will find support from our fantastic members.

The British Liver Trust has a lot of information about cirrhosis that you may find useful;

britishlivertrust.org.uk/in...

We also have a helpline that is open Monday to Friday 10am to 14.45 on 0800 652 7330

You are not alone. Take care

Warm wishes

Trust1

[ballie52]

That's absolutely shocking Brian!

Having to go through all of that and still they refused to give you the support you deserve!

I completely understand your frustration!

Maybe try and apply for the pip again with the back up from your doctor or consultant plus get help from someone who knows how to fill in the forms to let them really understand your health issues.

Citizens advice maybe able to advise you on where to go from here..must be terrible knowing that you are really struggling with health issues and these people are denying you the rights you deserve!

This government is failing the most deserving of the sick and disabled people in this country!

Shame on them!!