New here

[Daftcookie]

Hi, i am new to this, got many health problems, cirrhosis being the latest (NAFLD) had no advice or explanation of what to expect! Very worried about my future and what is gping to happen to me 😭

[AyrshireK]

Hello Daftcookie, welcome to the forum where hopefully you will feel supported and learn more about your condition.

The British Liver Trust main website page is a goldmine of information.

Here are links to the information pages for cirrhosis, Non-Alcohol Related Fatty Liver Disease and one for Living with Liver Disease. I am sure they'll give you plenty of reading for now and any further questions come back on and ask away.

britishlivertrust.org.uk/li...

britishlivertrust.org.uk/li...

britishlivertrust.org.uk/li...

All the best, Katie

[Daftcookie in reply to AyrshireK]

Thank you for the help, didn't know where to go or who to ask for advice. I know absolutely nothing about my prognosis .

Oh and i am going blind too lol!

[Denise15]

What have ur drs said about the future? I can only say I too had cirrhosis as a result of NAFLD and I had a transplant about 7 months after being listed. This was after a period of assessment re suitability to undertake a transplant. I am now nearly 4 yrs on. I did have some complications post transplant that were not to do with the transplant necessarily so had a long rehab. I would suggest you ask more direct questions to your specialist which I expect u are now seeing. Having additional health issues won’t necessarily stop u having a transplant if needed but speak with ur specialist. Good luck

[Daftcookie in reply to Denise15]

Don't know who my specialist is, he was in the gastro clinic, was originally seeing them for diabetes. That was about 3 months ago, didn't realise it was a serious problem, until now and doing some research.

Thanks for advice.

[Denise15 in reply to Daftcookie]

I was initially treated by a gastroenterologist who referred me to Addenbrooks one of the regional liver specialists. U could ask if u are needing a referral. If u don’t need a referral ask why. It might be a positive thing. Which area are u in?

[Daftcookie in reply to Denise15]

Near Addenbrookes lol! Well 20 mins. Was told def cirrhosis, had fatty liver for years, diabetic for 5 years and on many many bad meds. Which i am trying to reduce now. Will see gp and ask to see a PROPER liver specialist. Thank you so much x

[Denise15 in reply to Daftcookie]

Good luck I only had very positive experience at Addenbrooks

[JimmyJackson]

Join the club

[Hidden]

Hi Daftcookie

Just a brief note to welcome you to loads of lovely people who will give you help, advice and will sometimes cheer you up when you need it!

Lots of people of here suffer with numerous liver conditions and cirrhosis and fatty liver conditions are quite common so you will find lots of nice people will be in contact shortly to answer any questions if they can.

As Ayrshire state's, you can obtain loads of answers from the BLT 'British Liver Trust website .... excellent source of information !,

Unfortunately I can answer any of your queries as I'm currently under investigation for possible PBC - Primary Bilary Cirrhosis .

All the best Daftcookie and I look forward to following you on this forum .

Take Care in the meantime

Shropshire Lass

[schirrosissufferer]

here is a useful link for you... nhs.uk/conditions/cirrhosis/ it does give some explanation...

[Gordon99]

Hi, I had NAFLD and suffered many symptoms over several years before finally receiving a liver transplant. The best advice I can give - whilst you digest all of the valuable information given in the links you have been directed to - is to immediately alter your diet. Your liver is not functioning fully so you can help it out by decreasing the food & drink that makes it work harder. Basically it's job its to help remove toxins from your bloodstream. So reduce the amount you consume. Cut out alcohol, reduce salt, fat, sugar. Your blood results will indicate any issues. When your liver does not work fully the toxins build up in your system and put pressure on your kidneys, spleen, etc. It can lead to ascites (fluid build up in the abdomen). Try to keep regular, never "hold it in" go when you have to - and often if you can. Everyone has their own path, you can learn a lot from the people on this site. Stay positive, make healthy choices, be prepared for a continually changing path. You must prevent the cirrhosis from getting worse. This is scarring of the liver which prevents it from regenerating - you can stop it getting worse by changing your diet. The cirrhosis may prevent full regeneration but preventing it becoming advanced will help you. Good luck.

[Hidden]

Hi Daftcookie

At the Trust we also have a nurse led helpline that is open 10-2.45pm Monday to Friday, you may want to call us for a chat about your diagnosis.

Here is a link to our details on our website;

britishlivertrust.org.uk/in...

Best wishes

Trust1

[Goldfish4]

Hi am liz and got the same thing if I can help just ask