Hi I posted last week on my liver concerns. I seem to be getting worse even though I've stopped drinking alcohol, exercising and eating healthier. Some days I'm ok and positive. But many more like today were I feel terrible. Pain in my right side and lower back, and mild itching. Pain in my left side has improved due to my diet I think (I have diverticular disease). My nails are getting whiter though.
Its my legs that seem to get worse. Muscle spasms and twitching, itching soles that get a burning sensation when I lie down. I'm concerned I've messed up my kidneys too. Anyone else have or had similar symptoms?
11 Replies
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Hi Cato
It sounds like your having a it of atough time of it all! Have you visited you GP recently to discuss all these changes ? Maybe a telephone call to your consultant if you have one as it may be a good move!
I'm sorry I cannot add anymore than the above other than keep up the healthy eating ! Avoid nuts as there not good for diverticular either.
Take care and get some advice asap.
Regards Trish
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Hi Trish thanks for the reply, I've a gp appointment next Thursday so I'll have to wait until then. I did see a gastroenterologist privately regarding issues with my abdomen but I'm not sure if I can or should even get in contact with him because he was a bit dismissive. I'd prefer to get referred to a different consultant.
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Hi again!
All I can say is good luck with GP appointment next week! My fingers are crossed your GP refers you to another consultant! Innthe meantime take care
Just to let you know, nuts and seeds are okay now with diverticulosis, unless you have another reason (ie allergy) to avoid them. I have diverticulosis too.
It sounds like a multi vitamin might help with the aches and pains, very common to deplete your reserves through alcohol.
I've stopped taking grains which has helped a lot with the diverticulosis but struggling to get enough carbs and calories into my diet. Nuts haven't bothered me really. I'll look into multivitamins. Thanks.
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Hi Cato83
The reason why I mentioned no nuts/seeds was because 2 of my friends who have the diverticuloasis have been instructed by there consultants not to eat them ! Like anything each consultants in there own medical field gives advice based on each patients medical history/requirements!,
I eat fruit and veg for my carbs but to be honest I try not to eat to many carbs as I gain weight if I do!
Not sure if you can relate to this but I have an ongoing issue with my upper right leg. My consultant appeared dismissive of it and said it's not related to my condition. The sensation I can only describe as a bolt of electricity which always takes me by surprise when it happens. My GP prescribed me 75mg of pregabalin which does seamed of helped somewhat.
Yes Maxey I get that too in my right leg when I'm sitting down watching tv. I think its something to do with my lower back as I there is a slight spondylolisthesis/disk slipping in that area picked up by a CT scan.
I know you still are here but you haven’t posted a recent update. How are you doing nowadays? Hope you’re a little better but maybe not since you still visit the forum ☹️.
Hi Miles yes I'm still lurking in the background I recently went to Glasgow for the BLT Roadshow and had a fibroscan done. It was 6.3 so just within the normal range I believe?
All tests and scans have come back normal regarding the liver but I continue to get a dull pain in the liver and right shoulder region, pale nails, red palms etc. I'm not normally like this as I can't seem to shift the thought that I've a serious problem with my liver. For example I got the flu jab during this week at work and the pain in URQ and right shoulder has flared up. Could be a coincidence I suppose.
I'm just going to continue to stay off the booze and live a healthier lifestyle and hopefully the pain will go away. And I don't know why I keep coming back to this website I think its great by the way but this health scare put the fear of god into me and there really is no other place that I can find that provides support and info on liver issues.
Thanks for asking after me. I hope you're well yourself Miles!
Hi Cat. Just wanted to say that my wife and I had the flu jab last Saturday. My wife had a bad day the next day with all of her muscles aching. She said it actually felt like she was going down with flu. I had aching shoulder muscles followed by 3 days of gastric upset, I'm not sure if the gastric upset was to do with the jab or just coincidence that I went down with that at the same time (my son and family have had a stomach bug) I have heard of quite a few people locally that have had muscular discomfort and felt unwell after having this years flu jab. Regards. Alf
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I recently went to Glasgow for the BLT Roadshow and had a fibroscan done. It was 6.3 so just within the normal range I believe? 
It seems ironic that I haver liver disease and never drink alcohol .
So far all results normal
Does anyone have experience of taking Ursodeoxycholic acid to relieve the itching associated with AIH?
biliary liver cirrhosis 2017
Fibroscan score of 6.1kpa but I have liver pain all the time can you have fatty liver pain with that score ? 
