My darling husband of almost 49 years passed away at the end of October last. He was diagnosed with cirrhosis of the liver in January, but this was following a discovery that he had a very rare heart condition... constrictive pericarditis ...which we now realise had been developing for some years, although symptoms only showed up during the last 2-3 years. It was only when the consultant at Papworth ordered other tests to decide whether it was safe to operate, and they were reluctant to operate, that the liver problems were realised.
I joined this website to help us understand what was going on in his body. We did not know anyone else with this condition, neither had any of our friends or their friends heard of the debilitating symptoms that cirrhosis brings. With two essential organs in the body going down, life quickly became exhausting for him and the medical professionals seemed reluctant to give advice as to how to cope. I realised that for cancer patients The McMillan Centres have a whole range of advice and guidance experts on hand to support patients with whatever was troubling them, they have become very very expert at raising money at every turn and it is ploughed back into research and patient support, but was surprised to find this was not the case for Liver patients.
My husband was a popular man, with a fantastic sense of humour, had been in business for 40 years and I have been comforted by so many cards and telephone calls. His funeral in our local church was attended by over 200 people, but even so I was humbled to learn that £950. 26p was raised at his service, which I have topped up to £1000 and shared equally between the British Liver Trust and the British Heart Foundation. He would have been blown away that his passing would have raised such an amount for these two very worthy causes.
We have had a brilliant life together, with no significant setbacks, but I miss him every day and will continue to do so for the rest of my life.
For all of you, still suffering I wish you well, for those with mild symptoms read the posts and learn from those not so fortunate., and I wish that those of you who have been lucky enough to have transplants, continue to go from strength to strength.