I was diagnosed with cirrhosis and enlarged spleen with varices and portal hypertension in june this year...long boring story but I still haven't seen my gastroenterologist yet but as I'd seen one privately he put me on his nhs list and arranged for a CT scan and capsule endoscopy. I had the capsule endoscopy 2 weeks ago and the specialist nurse told me she would ring me 5 days later to give me a preliminary diagnosis. Needless to say she didn't ring. I rang her several times leaving messages for a call back but never got one. I finally got her last week and she told me that there was bleeding in my small bowel and what looks like ulcers. She would discuss it with the gastroenterologist and call me back. Surprise, surprise no call. I rang this morning and she said that it looked like someone was reading my report and she'd go and speak to them and call me back. I've still not heard from her and I could cry with frustration. I know that they're busy and I'm just one of the many patients waiting for answers but I'm feeling very selfish and want some answers. I feel that my health is deteriorating but I still don't know the cause of my cirrhosis and wonder if I should be on medication or need further tests.
My 85 year old mother is driving me round the bend. She's constantly seeking attention. I feel like I can't cope with her demands at the moment.
Take care all. Deb