Recommendation needed: Can anyone... - British Liver Trust

British Liver Trust

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Recommendation needed

Pop007 profile image
11 Replies

Can anyone recommend a consultant for my husband? He’s recently had acute liver failure, cause by prescribed medication. We are in the Cheltenham area.

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Pop007 profile image
Pop007
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11 Replies

Hi

I am originally from Cheltenham and still have family there. Havent needed a liver consultant so couldnt recommend but they speak very highly of Cheltenham General hospital as a whole. Gloucester hospital nowhere near as good and avoid Stroud at all costs.

Hope you get the help you need

Laura x

in reply to

Poor stroud 😢

in reply to

Deadly Stroud! They failed dismally at taking appropriate care of my disabled mother before she i got her transferred back to Cheltenham where she sadly died shortly after surgery. Stroud then recieved 2 sides of A4 paper detailing their flaws from my sister and I. Some of which they denied others they apologised for. Maybe things have improved since that happened in 2015 but it's hard to gain any faith.

in reply to

Aww Laura darn i'm very sorry - should have known you would have had just cause for such commment 😒

Sorry

Miles

in reply to

No worries. She was a wonderful strong, independent very clever lady. We take comfort that we lost her the way we did. She was 80 and would have really struggled to adapt to the loss of her lower leg. She's in a better place now and I have incredibly happy memories and get a warm glow when I think about her ❤ 💖💞

in reply to

Laura

Thank you dont feel quite so bad now 😏

Miles

Hi Pop and welcome

When I was in hospital having my t/p there was someone in my ward from Cheltenham. I was at the Queen Elizabeth Hospital in Birmingham. Like me he got referred there from his local hospital which I am guessing (don't know) was Cheltenham.

Are you going to a clinic at the hospital? What happened to me was, at my local hospital Royal Derby, a consultant from Birmingham would join the local Derby consultants at Derby once every 3 (?) months. If you were really really lucky you would be invited in to that joint clinic. If Birmingham think you need help they take over (brilliantly I might add) your care and you have to go for loads and loads of tests and extensive (including a 3 day assessment clinics where you are assessed by loads of specialists, psychological as well as medical to see if you need a transplant and would be mentally up to it!). End of longest sentence ever....

If you can it might be worth talking this option through with your (hubby's) GP and/or Consultant.

I don't know obviously (!) if he drinks Vimto but he cannot drink alcohol or at least commit to not drinking alcohol (Vimto - my sad joke word) at all or he will not have a possibility of a transplant (well that is what is implied!). They do, even in the t/p ward, (i've seen it) random (well I think its targeted at certain patients lol) blood tests for alcohol.

(That was a lesson in how NOT to construct a sentence).

Sorry for rambling on but steroids keeping me awake again 😀

Miles

🇧🇧

JimmyJackson profile image
JimmyJackson

Really interested in your post, as I am in similar position & the only answer to my ongoing liver deterioration seems to be prescribed drugs, as have always kept very fit & never consumed much alcahol, could I ask what drug you think caused your husbands problems. I live in Cornwall & back up help not great.

Hope you get the help needed

Jimmy Jackson

Pop007 profile image
Pop007 in reply toJimmyJackson

Looks like it was an overdose from an iron infusion and or a arthritis drug . He does not really drink, maybe 2 halfs of beer a week maximum.

Hi,

We cannot directly recommend a specific clinician or hospital, however, we do have a list of current UK liver units that you may find useful;

britishlivertrust.org.uk/li...

We hope that is useful and wish your husband all the very best,

Trust1

Pop007 profile image
Pop007

Have seen no consultant or gone to a clinic, since his discharge 5 weeks ago. Abandoned. He doesn’t drink vimto!!

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