Advise needed: Hello everyone As you... - British Liver Trust

British Liver Trust

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Advise needed

Dannythedog profile image
14 Replies

Hello everyone

As you know my husband had his transplant a couple of weeks ago. Unfortunately he is still in ICU, his liver is apparently working well but he has been taking a lot of seizures and they can’t seem to determine the cause. They are changing his medication around and trying different things out. He was unresponsive to tests carried out this morning and naturally I’m very worried. Has anyone else been through this? Appreciate any advise you can give. I know everyone has problems and even though I am not posting to often I certainly am thinking of everyone.

Many thanks

Geraldine ❤️

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Dannythedog profile image
Dannythedog
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14 Replies
ThreeSmiles profile image
ThreeSmiles

Hi Geraldine

So sorry to hear this. I have no experience of that but obviously do hope they find out what is causing the problems. 🤞.

Really wishing you both the best and a speedy recovery for your husband. 🙏.

Miles

Dannythedog profile image
Dannythedog in reply toThreeSmiles

Thank you 😊

Hi Geraldine

I too have no experience in this area but do hope your hubbies medical team can track down the cause of his seizure's.

I shall be keeping my fingers crossed in the meantime that he pulls through. I know this is not much but here's a virtual hug 🤗 especially for you! ❤

Love Trish xxxx

Dannythedog profile image
Dannythedog in reply to

Thank you 😊

Wass71 profile image
Wass71

Geraldine,

So very sorry to hear you are having to cope with such an awful situation. I'm sure the Dr's will do all they can, a change in medications may well make a big difference. I hope you have support, do you have any relatives with you, or are you here alone?? Please please look after yourself, ask for help from the coordinators if you need it. I'm keeping you in my thoughts and hoping positive changes will soon come.

Very best wishes

XWassX

canadaliz profile image
canadaliz

Hi Geraldine, It is my understanding that seizures are a fairly common post transplant event occurring in approximately 40% of patients. Keeping in mind that your dearheart is in the best possible hospital I have every confidence that they will sort out the balance of his meds and get him settled. See this as a challenge but picture clear skies and open roads ahead. We are all with you every step of this journey. I am so glad you were able to drop by and share your current status as we have been thinking of you daily and sending strength through prayer. Hang in there and like other supporters here have reminded you--take care to rest and eat as best you can.

Yours in support and sharing the burden of your worry, Kev and Liz in Canada.

Smyally profile image
Smyally

Hi Geraldine. I’m sorry to hear your husband is suffering seizures. I don’t have any experience of this myself and I really do hope the doctors manage to get things sorted out as soon as possible. Thinking of you lots and hoping he gets better soon xxx

Sophieatkinson profile image
Sophieatkinson

HI Geraldine, I hope things have improved for your husband over the last few hours, thinking of you both and looking forward to hearing that your husband has stabilised. xxxx

AyrshireK profile image
AyrshireK

Hi Geraldine, I hope they can get to the bottom of these seizures - we have had other people post on here in the past who had seizures post transplant - some of these were put down to Tacrolimus/Prograf, another had a blockage owing to wrongly placed piping during a part of t/p op ( healthunlocked.com/britishl...... ).

Fingers crossed they get answers soon and get hubby on the road to a hard earned recovery.

Katie

Dannythedog profile image
Dannythedog

Thank you all so much, yes I have every confidence in the Drs and nurses in LITU, they are fantastic and I’m sure they will get the balance right ❤️❤️

Best wishes

Geraldine

davianne profile image
davianne

Hi Geraldine, sorry for the late reply.

I am sorry to hear of your Hubby's seizures, but as others have said it is not unknown post transplant, and I hope and pray that they can find and remedy the problem. Keeping everything crossed for a speedy resolution.🤞🤞🤞

David

Good afternooon Dannythedog,

Sorry to hear your husband is so unwell.

As all our lovely forum members have said, I am sure the team that are looking after him will be trying to get to the root of his problem. Ask them as many questions as you need to - they should be able to keep you up to date with your husbands management plan and care.

You can also call our helpline on 0800 652 7330 Mon- Fri 10am-14.45pm if you need any external support.

Best wishes to you both, and remember to look after yourself too

Trust9

alfredthegreat profile image
alfredthegreat

Hi Geraldine. I'm sorry to hear of your husbands problems. I hope that this is all sorted very soon.

Thinking of you both

Very best wishes.

Alf.

Bbsmom profile image
Bbsmom

No advice Geraldine but sending Belfast hugs and kisses your way to all the family in your time of worry. Much love Eilish xxx

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