Becoming very snappy

[ktan49]

I've noticed I'm getting quite angry and snappy at little things, along with my confusion/forgetfulness getting worse. Does anyone else have a physical fuzzy/numb feeling in your head with HE? Funny thing is I used to be a massive sufferer of headaches daily before this started... Not a single headache in last 2 months with all these symptoms

I'm not an angry person but I've noticed last few days I've become quite nasty at times.

If my bilirubin is normal would you say my liver is just about managing at the moment? No swelling either

[jojokarak]

H.e causes personality changes I could snap at the smallest of things.. are you on lactose?

[ktan49 in reply to jojokarak]

Taking lactulose 3 times a day at the moment .. waiting for appointment with consultant then I'll get rifaxamin.. gp won't prescribe it.. She didn't even know what rifaxamin is..

[jojokarak in reply to ktan49]

You can up your own dose of lactose until you get the rifaximin ... No matter how much lactose you take it won't cause you any harm I know it's awful but it is good for h.e .. that's what my consultant told me and I suffered with it bad and I was on rifaximin as well x

[ktan49 in reply to jojokarak]

Thanks jojo, yeah it's nasty.. really spacing me out now. Gonna ring my consultants secretary tomorrow see if he can sort me a prescription for rifaxamin out.

[Hidden in reply to jojokarak]

Ditto - I maxed out on lactulose and rifaximin didnt seem to do anything wrt HE - for me. In the end they gave me loads of liquid enemas to self administer. Oh joy, oh rapture, oh poo poo!

Miles

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[Hidden in reply to jojokarak]

Hey jojo

Am I peculiar because I liked lactulose!

(but now don't have to have it 😬)

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[ktan49 in reply to Hidden]

I liked it initially.. getting pretty sick of it now lol.

[Couch1 in reply to Hidden]

I didn't consider discontinuing taking lactulose- had such horrible H.E. didn't want to take any chances... (And I am all about less is more in the pharmaceutical department) Great for you! ********* I was prescribed Rixafimin. $600. A month!! Even with Medicaid! Needless to say, I don't take it. (I am doing better than ever!) still curious/angry why it was prescribed- yet SO unavailable, financially. Wth!??

[Hidden in reply to Couch1]

Wow! We are lucky here in England we get Rifaximin and all others) free on NHS (which we have to contribut to through National Insurance which you pay every month or whatever!)

Miles

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[Couch1 in reply to Hidden]

Fortunately, I feel pretty good* much better than when I was first diagnosed. I imagine not drinking anymore has a lot to do with that hmmmm, would I possibly feel even better if I were taking Rixafamin?? Don't think so. My doctor could've just been trying to cover all the possible bases to quick-fix me

(Now my concern is fatty liver)

[Brett11 in reply to Couch1]

Hi Couch1,

In the USA you can get Xifaxan free if you download the coupons from their website. You can also order them very cheap from Canada or Mexico. There are US based websites to order it from. I’ve never been to the USA but know a lot of cirrhosis sufferers from there.

Hope this helps.

Brett

[Couch1 in reply to Brett11]

Wow. Thank you. I didn't look into it. one of the women at my doctor's office was kind enough to give me a sample for a month, I never took it. I was just so disgusted at thinking having to pay $600 a month for something I've never even heard of-and don't understand- even after looking into it?? Thankfully, my attitude was positive enough in other areas of my life that I seem to have come through, or at least manage this for now. Fingers crossed

[Bermuda1]

As Jo said are you on lactulose , if not you should be and ask to be put on RIfaxin if it gets any worse. They are commonly used together .

[positivelycarol]

I am struggling with some confusion on organising things,remembering things and get really stressed.i am on rifaximin but not lactilose,my consultant checked and said so long as “regular “ not needed.trying to cut down on fats,cheese etc . I had hep c (treated and gone now)and chirosis (no alcohol for three years now)but depressed,no energy and yo-yo-Ing with bloating just holding it steady with spiromolactone.take colvedilol for varices,didn’t take well to endoscopy..hoping healthy diet and what little excersise I can do will help.

[Hidden in reply to positivelycarol]

Hi Carol

I empathise! I had all those symptoms but now nearly all gone post t/p. Keep going to GP and, if really bad, A&E (but don't drive there - ref insurance issues). Bet you don't sleep very well?

You seem like doing all the right things. Good luck.

[Couch1 in reply to Hidden]

Sleep? Regular sleep- what's that?? I suffer ridiculous insomnia, restlessness while still being majorly fatigued.

Amped up cardio exercise helps... I just answered my own question. Easier said than done-

[Hidden in reply to Couch1]

When i was talking about regular i.e. 3 or 4 times a day of exercising you bowels not your whole body / heart 😁

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[Hidden in reply to positivelycarol]

Oh yes, just remembered, i hope "regular" means 3 or 4 times a day. Thats what Birmingham set me as a targe!

😬

Miles

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[ktan49]

Fibroscan booked for Monday 22nd, not long now!

[Sillymo]

I have been very snappy of late. Not like me. 😍