Advice please: Hi, first time posting on... - British Liver Trust

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Advice please

Nannychoc profile image
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Hi, first time posting on here. I was told that I have nafld which was then changed to Nash. After a liver biopsy and scans etc, I have now been told that I have cirrhosis, an enlarged spleen and portal hypertension. My first fibroscan was 25, the last one I had was 38.3. I've always been someone who takes things in my stride and I'm not particularly worried about it. Do you think that I should be? I don't like my family worrying about me so I don't really discuss it with them. Any advice welcome.

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Nannychoc profile image
Nannychoc
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GrandmaDylan profile image
GrandmaDylan

I wish I could be like you and not worry myself stupid about what might happen. I've been diagnosed with cirrhosis and an enlarged spleen with varices and it's on my mind every second of the day. Which obviously achieves nothing 😵 I don't want to be too ill to enjoy my grandchildren and want to see them grow up. I too don't want to worry my family so I just keep everything inside and cry when I'm alone. I'm terrified of HE, acites and all of the other rubbish that's involved with this disease. I also have quite a few other medical conditions which when they're all combined make me feel absolutely rotten.

Nannychoc profile image
Nannychoc in reply to GrandmaDylan

I get you! I also suffer with depression, anxiety and a mood disorder. Also psoriatic arthritis which has been treated in the past with methotrexate that can affect your liver so it probably contributed to my liver problems now.

It's the thought of my family worrying that probably stops me from talking about it too much because they had to step in and help me when I had a mental breakdown, I think I've put them through enough!

Thank you for answering my post, it's good to know that other people have similar experiences as myself. I wish you good luck in your health journey and I truly hope things improve for you x

GrandmaDylan profile image
GrandmaDylan in reply to Nannychoc

💓

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