Advice please: Hi, first time posting on... - British Liver Trust

British Liver Trust

37,114 members18,202 posts

Advice please

Nannychoc profile image
3 Replies

Hi, first time posting on here. I was told that I have nafld which was then changed to Nash. After a liver biopsy and scans etc, I have now been told that I have cirrhosis, an enlarged spleen and portal hypertension. My first fibroscan was 25, the last one I had was 38.3. I've always been someone who takes things in my stride and I'm not particularly worried about it. Do you think that I should be? I don't like my family worrying about me so I don't really discuss it with them. Any advice welcome.

Written by
Nannychoc profile image
Nannychoc
To view profiles and participate in discussions please or .
Read more about...
3 Replies
GrandmaDylan profile image
GrandmaDylan

I wish I could be like you and not worry myself stupid about what might happen. I've been diagnosed with cirrhosis and an enlarged spleen with varices and it's on my mind every second of the day. Which obviously achieves nothing 😵 I don't want to be too ill to enjoy my grandchildren and want to see them grow up. I too don't want to worry my family so I just keep everything inside and cry when I'm alone. I'm terrified of HE, acites and all of the other rubbish that's involved with this disease. I also have quite a few other medical conditions which when they're all combined make me feel absolutely rotten.

Nannychoc profile image
Nannychoc in reply to GrandmaDylan

I get you! I also suffer with depression, anxiety and a mood disorder. Also psoriatic arthritis which has been treated in the past with methotrexate that can affect your liver so it probably contributed to my liver problems now.

It's the thought of my family worrying that probably stops me from talking about it too much because they had to step in and help me when I had a mental breakdown, I think I've put them through enough!

Thank you for answering my post, it's good to know that other people have similar experiences as myself. I wish you good luck in your health journey and I truly hope things improve for you x

GrandmaDylan profile image
GrandmaDylan in reply to Nannychoc

💓

You may also like...

Antabuse advice please.

I have been prescribed Antabuse by my Dr (at my request) but they have been sitting in my bedside...

Some honest advice please

should. I have had 2 liver tests and an ultrasound all of which have been clear but I have had a...

Cancer... Advice please

husband has a small cancer on his liver. They are planning a MRI scan to check and then will get it...

Advice please - bewildered

still there. Saw another GP who said nothing about the scan, examined me briefly and said he would...

Advice wanted please.

all, newbie here, my husband diagnosed with cirrhosis about 4 weeks ago, he is extremely tired all...