British Liver Trust
12,859 members6,315 posts

Well Blow Me

1st CALL ALERT

well there we go....

73 Replies
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Hi Chelle - does this mean you've been called in for transplant? Sorry, I don't know how it works. Good luck and lots of love.❤ xx

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Yep it does x

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Good luck again. Will keep you in my thoughts. 💖 xx

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OMG Chelle I’m delighted for you good luck. We are all certainly benefit from the recent change to scoring praying for you. I was amazed at how quickly it all went for me, brave girl 🙏😇❤️

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It was not viable unfortunately. So will be going home at some point xx

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Oh sorry to hear that. I get so excited when I read the posts where people have had a the call to transplant. I know my husband will never be eligible for one for all sorts of reason, but I pray for all you younger people on here that your miracle happens. Fingers crossed that you won’t have to wait much longer🙏🤞JX

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Good luck , just hope your ok no matter what the outcome of the call. Will be thinking of you xx

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All the best Chelle_ . xx 🌿

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Good Luck, hope all goes well xx

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Oh chelle.. im keeping everything crossed for you hunni.. will be thinking of you...good luck!!! .👍🤞🍀xxx

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Good luck! All the best with your gift of life. You are in my thoughts and prayers. X

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Oh wow! At last! Good luck and you will be in my prayers!

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🤞good luck , Prayers for you

🤠 DlD

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Arrived at Hospital at 0120. Had CT scan, bloods and ECG. Waiting to find out if the Liver is viable about 5am. If it is I'll go down about 7/8. Xx

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Good luck chelle xxx

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Thank you but it’s a no go. The livers not viable...xx

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Chelle, must be mixed emotions for you. On one hand you've had the call, so you're up there on the list, but so sorry it didn't work out this time. After all you've been through you'll definitely want a really good liver, only the best!!

As ever keeping things crossed and sending positive vibes!!

E x

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Oh chelle, bless. But look at it on a positive note hun. You had your first call.. it wasn't meant to be this time but i have every faith it won't be much longer.. see your dreams are not all bad. 😏.. sending big ( hugs) xxx

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Aah sorry to hear that and hope you feel as well as possible. So hope your next call is very very soon.so many thoughts and emotions for you

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I am so sorry love. Words aren't enough. Stay strong and take very best care - Nick

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Good luck. Hope it all goes ok x

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Good luck all the bested and love and hugs xx

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All the very best xx

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Good luck , Hope everything goes swimmingly x

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It’s not viable. I’m going home soon....xx

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What a shame. Chin up though and hopefully your next call will come soon xx

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I do hope that it all goes well for you

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Thanks Carl the Liver wasn’t viable x

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Chin up chelle you now know it will happen take care sweetheart x

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Your emotions must be all over the place Chelle. Hopefully next time.. 😘

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Gutted for you love 😔 must not be long now though. Xxxx

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So sorry to hear livers not viable. Keeping fingers tightly crossed for next time xx

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Best of luck.xx

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My 1st liver offered wasn't right and i want right for the 2nd one but then the 3rd one came along and after nearly five years all is going very well. It WILL happen soon, stay strong and keep positive and the right one just for you will soon be here xx ♥️

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I've just read, well done Chelle. I know your family aren't with you. Do you have someone there with you?

I was talking to my local MP last Friday, about your case. (No names mentioned) I was saying how much Alcohol-related liver disease puts such a strain on the NHS and how someone in your case who needs that transplant keeps on getting pushed to the back of the queue when it comes to available livers, as there's always someone in more urgent need. If there were less alcohol-related transplants, then there might be more livers available for people such as yourself. I've managed to talk my MP into visiting the local Liver ward up at our hospital to get a greater understanding of the problem.

Anyway, I digress. I've got everything crossed here for you and hope it's the real deal and that you get to have this transplant that you both want and need so much.

Good Luck Chelle.

Richardxxx

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That was a bit harsh Richard.. its not about who has alcohol related cirrhosis or genetic or any other type, its about suitability etc.. i find your remark quite offensive.

I have ALD , 10 years on 22 June this year . Abused and kicked around and hospitalised by my now ex husband of ten years. It was my escape from the anxiety i had to live with day after day. If i had had the knowledge and support i have now it could have been different.

So many have had transplants on this forum un alcohol related so why you had to say that i find is an indirect kick to people like me when you know not of the reason behind it .. i could never post what you have. Awful...i don't know who you think you are but your no better than anyone else even if you think you are .i have a good mind to report you for this.

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I didn't mean to sound harsh, but what I'm trying to say is that if Alcohol abuse was tackled much better in our society the'd be less people in need of a transplant due to alcohol-related conditions, of course it's all about the suitability or the organ. But it's also about the saving of human life and quality of life. By the time a person liver becomes so damaged that they are in need of a transplant is the only viable option, then the cause of the condition isn't a question. But what I'm trying to say, is by making greater awareness at the fatty liver stage, then the need for a transplant can be avoided. I remember reading somewhere and I've been searching to try and find it again, but I did read that 72% of all transplants carried out are alcohol related. The other 28% are through other causes. I'm just trying to make this an even playing field by getting the 72% down and the 28% up. I really did mean to sound offensive. Please forgive me if I've offended anyone.

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Richard be very careful how you word things. Some people are far more susceptible to damage from alcohol , some of that is also due to genetics which has been proved. Also would it be a glorious world if people never needed to self mediate , through any medium , be it alcohol , drugs , food , and,any other things. Some people also have multiple reasons why they have a damaged liver , yet alcohol gets blamed. Reasons should never matter it is purely suitability, viability and need .

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Spot on!

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Well, you did mate, you really did. It made my blood boil.If you need a liver then you need a liver. If you can show me one person that got up one morning and said, right, I intend becoming an alcoholic then I'll prove the Moon's made of green cheese. Alcoholism is just as much a disease as any other. Patients need support, not vilification and guilt-tripping. There is so much guilt involved with cirrhosis without implying that they don't deserve a bloody transplant. I'm sorry, Richard, but that has really pissed me off

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Well said Nick. 👏👏. No one chooses to be an addict ,just like no one chooses to have diabetes, or like my poor mum who had a genetic heart valve problem that took her away from me 29 yrs ago..

Keep strong my friend. Linda x

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I couldn't agree more, Linda, every word. That is pompous, sanctimonious,self-righteous and down-right insulting bollocks. How are you, love? I hope you're good

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Hi lindà, juliè here just supporting your pòst xx

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Hi Jules, thank you! How are you now ?. Any better xx

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Hi I totally agree about what he wrote and I think if you don’t want to report him for what he said I will because he has no right to sit in judgment he should be removed from this forum he can really hurt people when they are already feeling low in fact I am going to report him right now and see if he can be removed

Donna xx

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Hi Donna,. Thack you for backing me up with a few other

Ive not been on the forum for a good 5 days now.i have had to stay off for a while, having a break from it all .

I support everyone on here , regardless of anyone's background, but to be singled out ( and that's what Richard was doing) labelling people made me sick. I notice he has gone very quiet now? Wonder why ??. I did not report him , i wished i had but i dont like to cause upset.

Hope your ok , and thank you.

Linda xx

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Hi Linda not a problem I just think he was totally in the wrong what he said and it really made me angry it’s so hard for people on here to try cope as well as possible but for someone to drag you down is bad everybody on here needs support take care I hope everything works out for you xx

Donna xx

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Thanks hun, you too xx

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Are you suggesting that no one with ALD should be offered transplant? My partner was diagnosed 16 years ago, at that time there was not so much info available, also when young you think you are invincible. He stopped drinking then and has not touched a drop since, I would like to think that if needed he could have the chance of a transplant.

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I think we've all sort of missed the point here. Richard isn't casting any aspertions about anyone or saying who is more deserving than others. If you need a transplant then you need a transplant irrespective of the reasons. What he's saying relates to putting more resource in place to tackle preventable or treatable causes of liver disease to reduce the demands on a system that is short on supply, i.e. livers to transplant.

There are two ways to cure a shortage, 1) increase supply or 2) reduce the demand. If there is a way of reducing demand by putting resource into treatment, help or education early on then surely that is better for everyone.

Liver disease is no different in that respect to any other. To prevent heart disease we educate about diet and exercise or treat cholesterol with medication. To prevent lung disease we educate about smoking and provide treatments to kick the habbit etc etc. How much resource goes in to those programmes? Do we not agree that more resource should be put in to treatment, education or whatever may be worthwhile to prevent, where its possible to do so, things getting to a stage where a transplant may be required? There is also no difference here whether liver disease is caused by lifestyle or a treatable illness. It makes sense to put more resource in to preventing or delaying progression. Having an MP on side to push that argument, i.e. to get that resource, is a good thing.

Anyway this is an argument for elsewhere. This is Chelle's post. Lets hope the next call has a better outcome. Good luck Chelle.

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Lol thank you x

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Richard I thought that was a really harsh thing to say and to stigmatise people do you need a transplant are your family sitting really worried waiting on that call unless you are going through it I don’t think you have the right to say who does and who doesn’t deserve a transplant my husband does not have alcohol related liver disease and he is very ill I do not appreciate the fact that someone like you can judge people as to what they do and don’t deserve I pray to god that you don’t have to go through needing a transplant and the stress and worry of the family I think you should think before you speak about people and their situations

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I wasn't stigmatising anyone, and I'm sorry but my message has become misconstrued. Kristian replied to my comment and understood what I was trying to say. It was never my intention to upset anyone, and to that end I have already made my apologises. Sorry for any upset. I have already had my transplant due to alcohol-related conditions.

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Excuse me ... lol .... I did tell you :) .. good luck lady!! Please keep us updated. All the very very best Jx.

ps- which hospital?

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Thank you but it was a no go. Liver not viable. X

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Ah bollocks! grrrrrr… look, what it does mean is you are definitely on the radar and I am sure now you will be transplanted very very soon! You keep well .. shout me if you need ANYTHING! I am at Leeds on Tuesday, a pre-transplant meeting (my first), I am rather hoping it means I get on the list!! Keep Well Jx

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Sorry Chelle,hope you get another call very soon. XX

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Dont make this like Facebook

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Sorry it wasn't right this time Chelle but you must be at the top of the list. Praying it will be soon. Koinonia

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Good luck Chelle, I've got everything crossed - Nick

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So sorry Chelle but hope you hear again soon - taking this as a positive - bout time it was your turn. You've been here for all of us - good luck xxxxxxx

Hope your next post says it's on and viable. xxxxxx

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Sorry to hear it was a no go, my sons first call ended the same way and it really is a strange feeling...I was kind of relieved as I didn’t feel ready but also sad it hadn’t happened at the same time. Luckily we got another call less than 48 hours later and that was the perfect one for him and he is now 15 weeks post transplant....I hope you don’t have to wait long for that second call and that the next one is the perfect one for you x

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So sorry it wasn't viable. Wishing you good luck and hope that you get call very soon. Love and hugs Lynne xxxx

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So sorry Chelle hang in there the right one is coming! Hugs

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I got called again at midnight I am just waiting now x

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I am pleased. Good uck

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So sorry but things are on the right track now.

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Anyone got an update yet? How is Chelle doing?

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Chelle had her 2nd transplant, but in the following hours that liver didn't get going, she was placed on the super urgent list and within hours there was a viable liver available, this one is looking better and she is currently in ICU whilst they let everything stabilise, she will be slowly bought round in 2-3 days, she has received a massive amount of support especially from many on here. Just after her first call she set up a transplant page on Facebook if you wish to follow, which is simply Michelles liver transplant journey.

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Thank you for the update. I have messaged her , but she won't read it yet. Not on FB, but thinking of her every day. If you see or speak to her, give her my love. Linda.

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Hì ĺinda, pm me and we çan catch up love Julie xxx

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Hi Jules, yes i will do hun.x

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Thanks for updating us, I've been checking a lot. She's really been through the mill then bless her, I'm so glad the 2nd one is looking better. Xxx

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