And it's me Yet again

[Robert1220]

Bit Shaky but just been speaking with Liver nurse who has confirmed that I have stage 4 NASH/Cirrhosis. Now I'm devastated and would like to know how I deal with this without falling apart. I'm so upset. Any advice would be so very welcome or any good news stories from anyone in the same boat as me.

[Hidden]

I am currently at stage 3 fibrosis, one stage away from yours. I think you need to find out where you are on the cirrhosis scale as, as I've read on here, you can still repair to some extent if it's at the first stage and compensated.

[Robert1220 in reply to Hidden]

Thank you Jackie. I'll do that and will be a bit more positive about things xx

[kensimmons in reply to Robert1220]

If it was caught early you certainly can have a good life and as my doctor says "A liver doctors goal is to have you die WITH some kind of liver disease not BECAUSE of it". If you tackle the cause and stop injuring it, the liver can recover a lot and in some RARE cases completely. But that is rare.

Nothing is set in stone, just focus on getting better there are stories of long term success - but you have to work at it.

Good luck!

[Robert1220 in reply to kensimmons]

Thank you for your encouragement xx

[Aotea2012]

I have cirrhosis. Mine was caused by alcohol. I obviously knocked that on the head once I got my diagnosis just over a year ago now. I’m probably fitter and healthier than I have been in years actually. I was very sick at the time of diagnosis and very frightened. By looking after myself....by that I mean not drinking, eating properly and exercising, I’ve become very well. My bloods are all normal, take no medication, all my muscle mass is back and can run a fair few miles. It’s certainly not a death sentence. If you met me you’d have no idea I had cirrhosis. Take care of yourself and your liver will do the rest.

[Robert1220 in reply to Aotea2012]

Thanks so much for this. I felt that I had a death sentence hanging over me but now I am encouraged to roll with it and abide by the advice everyone has so kindly given to me by my fellow sufferers on this brilliant forum. I no longer feel alone trying to cope with this illness. A huge thanks to you all ♥️

[Roy1955]

Over 5 years since my incidental cirrhosis diagnosis and still no symptoms of liver disease!6 month tests are a pain in the arse and constant reminder that I "might" get sick but so far so good.

My private consultant (a professor and best in UK) also said that if I respect my liver I will die WITH cirrhosis NOT because of it.

[Robert1220 in reply to Roy1955]

That's such good news Roy. I feel reassured that I will be okay living with it. It was such a bloody shock to be honest. Thanks again. So glad to know you're doing okay x

[Iro1]

I tried to kill myself when I thought I had cirrhosis all of which I have detailed before. Lifestyle change can have a big impact and 3 years later I feel fine despite having had various symptoms over that time. Just had Covid (second line) after 2 days of mild symptoms it cleared up (I isolated for 5 days) and I went back to playing football today As my wife said to me your liver must have some fight left in it! Be positive just try to stop damaging it further like me yoy are probably more likely to die with it than because of it!

[Robert1220 in reply to Iro1]

I think that's what I'm accepting now. I don't drink and I have made huge lifestyle changes and lost 30 lbs. But I know its going to be a tough hard road to travel but I want to see my grandkids grow up. I just wonder how many people there are out there with no idea that they have NAFLD or NASH. In so glad that I know the score now. You can't fight something that you don't know about.

[Iro1]

It came as a complete shock to me which it should not have done I was overweight and drank and also on reflection messed with nasty chemicals as part of a misguided diy project. I also want to see my grandkids and touch wood I am living symptom free

[Robert1220 in reply to Iro1]

I hope that will be me too x