I’m a bit confused?

[Brett11]

So my liver went from decompensated to compensated. My 20% of good liver is doing 100% of my liver now. That’s fine but is it really compensated? I have banding for the GI bleeds, pills and a low liquid intake to stop the liquid retention. I take drugs to stop the HE. So is my liver really compensated or not? I feel more crap now and spend more time in hospital now than when I was decompensated.

Strange question?

Brett

[Millenium]

Damn I don;t know much about cirrhosis but reading this i am really praying i dont have it. fatty liver is enough to contend with I am sorry your in this situation but I did find this.

hepatitisc.uw.edu/go/evalua...

[Brett11 in reply to Millenium]

How spooky is that??? I was reading that yesterday. That’s what made me ask the question on here lol.

[Millenium in reply to Brett11]

well buggah me.

[Brett11 in reply to Millenium]

Haha. Cheers for looking though mate. I’ve got a doctors appointment on Friday. I will tell him to refer me to the liver transplant docs in both Sydney and brissie to see if I can get on the transplant list.

Fingers crossed. I bet he won’t though. Mean bloody doctors lol.

Cheers mate,

Brett

[Millenium in reply to Brett11]

If you are sick you have a good shot. Age and your lifestyle also comes into account.

[Brett11 in reply to Millenium]

I’m still only 49 and 10/12th years old lol. Not much of a lifestyle lately either.

[Millenium in reply to Brett11]

im 32 and grade 3 fatty liver LOL next stage is Cirrhosis I hope I have a way back.

[Tangointhenight]

Hi Brett not an answer to your question but i have a question if that's ok? How do you know you have gone from decompensated to compensated? Do the doctors tell you from tests? I was just curious thanks

[Brett11]

Both my liver doctor and my GP told me from blood tests, CT scans etc

[Millenium in reply to Brett11]

i am pretty worried i have cirrhosis doctor went from unlikely to possibly in 2 weeks

[Nyork10]

Hi Brett - i'm the same I've gone from decompensated to compensated, I did ask my consultant to confirm this about 6 months ago and he said basically the same as you - the remaining part of the liver that hasn't been affected is doing 100% of the work.

How regular are your blood tests? I get mine done every 3 months and an USS every 6 months - i did have a scare last week as i'd basically felt like cr*p for 3 weeks. The Dr agreed that it could possibly have gone back to a decompensated state however after blood tests it was my reaction to a very mild viral infection which having cirrhosis hit me a lot harder than those without this condition.

In terms of the transplant list i'm not sure how it works in Australia - Im in the UK and I was put on the transplant list initially but after 9 months I was removed as my condition was compensated. I think if your test results etc are saying you're compensated you will struggle to get added to the transplant list.

I don't know if thats helpful at all but it seemed like we are in a similar (ish) situation! 🙄

[Brett11 in reply to Nyork10]

I get blood tests usually once a month and see my liver doctor every 3 months and see my GP almost every Friday. I get the camera down my gob every 6 months and the other scans every 6 months and every time I get admitted to hospital.

Phew! That’s a lot of tests and doing tests and waiting for results. I must have had some sort of life before cirrhosis? I can’t remember lol

Cheers,

Brett

[Brett11]

Thanks for that. It seems that you have to be really ill but not too ill to go on the register.