Insomnia

Anyone else having sleep trouble post transplant? It's been 13 months since the surgery and my sleep seems to be getting worse rather than improve. I was prescribed sleeping pills but they don't do much and make me feel like 💩 during the day.

Been doing some light exercise as well as bike rides so I can get a bit fitter and tired for the nighttime but keep having naps at the most random times which doesn't help my night sleep.

[Millie09]

Hi KLDN

i am not post tx but i am suffering with insomnia. Every bloody night till 5 am .. thing is i can nod off without even knowing!! I just wake up after half hour.. i cant get through the day without a nap at some point. Does my head in .not on sleepers due to end stage f4 fibrosis. I so know how you feel .wished i could help..

[Faithfull in reply to Millie09]

I'm replying to you as well i don't have to write you said exactly same as I was .I cant believe I'm still up hope today is ok I be on here tonight I should have a diagnosis by then .

[jojokarak]

Hi kldn I am the same I am 15 months post and it seems to be getting worse. I have mentioned it numerous times to consultants and they just blame the meds... I am having naps during the day otherwise I wouldn't function I know a lot who are the same I do think it's just part and parcel of post transplant life xx

[Hidden in reply to jojokarak]

I know JoJo, so frustrating... 😩

I noticed during the summer holidays sleep was much better. I was managing 12-8 every night with no day naps. Need more sun & sea I guess 😎

[jojokarak in reply to Hidden]

That sounds great to me 😁 I think we will all find our own ways of adapting to the new way of life as what works for one doesn't always work for another ... Hopefully we will both find it soon before I get shot for looking like a blood zombie 😂

[Fastkat]

Hi kldn

I’m pre tx and don’t sleep at all at night and boy those nights are long. I haven’t spoke to the doctor and just accept it’s part of my condition. I fall to sleep randomly in the day but only for about an hour. I would have thought all that changed post tx.

Still want a tx even if it continues. I’ll have to get a night job!!

[Hidden in reply to Fastkat]

I know how you feel Fastkat, I was going through the same thing just over a year ago. Insomnia is part of the joys liver disease brings, unfortunately. 😔

Oh yes you should definitely push for a transplant. Even though sleep is still not great, there's no comparison to pre transplant health-wise. Besides, what other option do you have?

Hope you get sorted soon.

Klodian

[charleeeeeeeeeeeee]

HI All, I know I'm not post transplant, but have had insomnia so badly the last year and had it all my life really.

This year I have found it is largely due to anxiety and worry, so as well as the fresh air and exercise, I have found that yoga, which I took back up last summer, has been amazing. Even five minutes of stretching out tight muscles through the day can help you feel relaxed yet energised yet calm and it helps just to do some breathing before bed and focus your mind somewhere other than worries. Perhaps worth a shot, I am a scientist and was so of the mindset 'I'm not a hippy - I'm not doing yoga', but I am absolutely the biggest fan! I't must be good for gentle restoration post op, of for HE? And it's no competition with anyone but yourself, it can be as hard as you like or as easy as you like and there are so many different styles. Plus going to a class can be a lovely bit of social support...

[Hidden in reply to charleeeeeeeeeeeee]

Funny you should mention yoga, my wife got a mat the other day and keeps saying we should start doing yoga together. I'll join her at some point. 😊

[charleeeeeeeeeeeee in reply to Hidden]

I absolutely love it, I've got all sorts of friends I've got to go with me;

my horse riding friend who has had back problems for 20 years, one who had a nervous breakdown almost with stress and anxiety last year, one who is getting over his alcoholism and has bad HE and could only walk with sticks at the beginning of last year

loads of people go who have stress, insomnia, all sorts, those who find it fun to spend an hour laughing cos we're all crap and are always trying to get legs and arms where they shouldn't go and end up in a heap on the floor

there's a nice 84 year old lady who had had two knee and two hip replacements, old, young, fat, thin...so no excuses!

Notice my enthusiasm! Pictures of you in your leotard I am sure would cheer us all up...

[Hidden in reply to charleeeeeeeeeeeee]

Hi

I get about an hour's sleep due to pain waking me!! I even nodded off mid conversation when someone is talking to me, so embarrassing!! Xxxx

[Hidden in reply to charleeeeeeeeeeeee]

Well Charlee I got pictures of me in a tutu from a pimps and hoes new years party 3 years ago. We switched it around so girls were dressed up as pimps and boys..... So be careful what you wish for 😂😂😂

[charleeeeeeeeeeeee in reply to Hidden]

Get them posted! I bet it was so much fun!