My partner has been accepted on the transplant list and throughout our journey to get to this stage; there seems to be no support for carers who are faced with the consequences of our loved ones conditions .
As I prepare to wait for a call , selfishly I wonder how am I going to deal with watching a man I love go down into a room with the possibility of not speaking to him again ( small chance) but still . What do you do with yourself waiting for the op to finish and how do you cope with the aftermath ?
This may sound very selfish as I am not having the op myself but I do feel that loved ones are put aside and forgotton. I have looked to see what support there is locally and there is hardly any.
I cannot be on my own with this view , so what ideally needs to be put in place to support families and partners of loved ones going through the transplant journey from start to finish.
Any ideas or thoughts ????