British Liver Trust
12,833 members6,301 posts

Welfare benefits while waiting for a liver transplant?

Hi all!

I am suffering from progressive PSC (autoimmune liver disease) and I am bound to have a transplant. In February I am starting transplant assessments. I work but find it increasingly difficult due to extreme fatigue, sleeplessness and muscle waste (I am min. 10 kilos underweight). I would like to quit work and focus on core exercises and putting on weight. Will I be entitled to any welfare benefits now? I can still wash myself, make a sandwich and walk but I would rather sort out benefits now when I am clear-headed than after the transplant when I am likely to be confused and bed-and-house-bound. Do I stand a chance for any financial help? Whom do I turn to first? I appreciate your help.

8 Replies
oldestnewest

Hi Panicz

I also have PSC and had a liver transplant in April last year. Although the PSC was only confirmed after the transplant, I know where you are coming from with the fatigue, muscle wasting and everything else that goes with it.

I don't know your employment circumstances. However, my advice would be to try and stay in work as long as you possibly can. Not only for your own sanity but also usually you are likely to be better off financially. If you are struggling with what you can do, speak to your employer about any reasonable adjustments that can be made. In the long run, after transplant, you'll need somewhere to go back to anyway.

By all means inquire about specific benefits you may be entitled to too. Try citizens advice as a first point of contact. There are also a few others on here that have a better understanding of the benefits system than I have who may also be able to offer some really good advice. However, i don't believe making yourself voluntarily unemployed will go down all that well and there may be some delay in receiving payments if you go down that line.

I do think you are sensible putting such affairs in order as soon as you can. However, don't burn your bridges with your employer if you don't need to.

4 likes
Reply

What is PSC?

1 like
Reply

PSC - Primary Schlerosing Cholangitis

britishlivertrust.org.uk/li...

1 like
Reply

Same as me diff use of language - Primary Biliary Cirrhosis. Thankyou

1 like
Reply

Totally different conditions but both auto-immune conditions of the liver.

Primary Schlerosing Cholangitis

britishlivertrust.org.uk/li...

Primary Biliary Cholangitis/Cirrhosis

britishlivertrust.org.uk/li...

3 likes
Reply

Hi,

You may find our publication 'Living with liver disease' useful to read, it details

Benefits and Entitlements in it;

britishlivertrust.org.uk/wp...

Best wishes,

BLT Admin

2 likes
Reply

I hope you get sorted soon xxxx

Reply

Thank Lynne. I hope so too. It won't sooner than in March.

Reply

You may also like...